# “Never Just the Next Case File”: A Qualitative Study Exploring Youth and Family Experiences Within Early Psychosis Coordinated Specialty Care

## TL;DR

This study explores the experiences of youth and families in a psychosis care program called NAVIGATE, highlighting how person-centered care and family inclusion improve recovery outcomes.

## Contribution

The study provides novel insights into youth and family experiences in psychosis care, emphasizing the importance of person-centered and family-inclusive approaches.

## Key findings

- Youth and families felt treated as individuals through shared decision-making and personalized care.
- Family inclusion was seen as a meaningful and impactful aspect of the NAVIGATE program.
- Participants expressed strong satisfaction with the program's comprehensive and person-centered approach.

## Abstract

Early intervention is critical in preventing relapse and promoting recovery for people with psychosis; however, recovery‐based services are not always delivered consistently across early psychosis intervention programs. NAVIGATE, a coordinated specialty care program, was developed to standardise care for psychosis while embracing principles of person‐centred care. It has demonstrated promising recovery outcomes internationally; however, the experiences of youth with psychosis and their families in this program are less documented and more broadly are often neglected in research and mental healthcare. This study explored youth and family member experiences of the NAVIGATE program as part of a broader multi‐site implementation study in Ontario, Canada.

Twenty‐two qualitative semi‐structured interviews with youth and family members were conducted using an open exploration approach to encourage participants to centre their experience in the program. Interview transcripts were analysed using thematic analysis.

Two key themes related to the impactful aspects of NAVIGATE were identified: (1) being treated as a person; (2) meaningful inclusion of family members. Overall, both youth and family members expressed a strong sense of satisfaction with the program. This satisfaction likely reflects the program's focus on shared decision‐making, individualization, and comprehensive care.

Youth and family member perspectives are critical to inform the implementation and delivery of psychosis care that helps youth achieve their recovery goals and supports family members.