# Older adults as active research partners: protocol for an umbrella review

**Authors:** Ann-Therese Hedqvist, Susanna Strandberg, Bodil Holmberg, Joakim Niklasson, Paola Violasdotter Nilsson, Willemo Carlsson, Maria Andreassen, Sara Bergstrand, Mats Holmberg, Charlotta Nilsen

PMC · DOI: 10.1136/bmjopen-2025-114885 · BMJ Open · 2026-03-18

## TL;DR

This paper outlines a study to review how older adults have been involved in healthcare research as active partners, aiming to identify benefits and challenges.

## Contribution

The study introduces a comprehensive umbrella review protocol to synthesize evidence on involving older adults as active research partners.

## Key findings

- The review will identify how older adults have been involved in research.
- It will examine terminology, models, and frameworks used in such involvement.
- Benefits and challenges of involving older adults will be synthesized thematically.

## Abstract

The involvement of older adults as active partners in research is increasingly being promoted to improve the relevance and impact of scientific knowledge. However, the evidence base on how older adults have been involved as active partners in healthcare research remains fragmented. To our knowledge, no review of reviews has yet provided a comprehensive overview of this body of evidence. Therefore, this umbrella review aims to synthesise review-level evidence on the involvement of older adults as active research partners. We address three questions: (1) How have older adults been involved as active partners in research? (2) What terminology, models and frameworks have been used? (3) What benefits and challenges have been reported related to involving older adults as active partners in research?

This study will follow the Joanna Briggs Institute (JBI) methodology for umbrella reviews. A comprehensive search will be conducted in Medline, CINAHL, Scopus, PsycINFO, Sociological Abstracts and Web of Science. Eligible reviews will be those reporting on the involvement of older adults (aged 60 years or older) as active partners in research. Two reviewers will independently screen titles, abstracts and full texts and perform data extraction using a standardised form. Methodological quality will be assessed using the JBI Critical Appraisal Checklist for Systematic Reviews. Findings will be synthesised narratively and thematically, with attention to reported roles, terminology, conceptual frameworks and the benefits and challenges of involvement.

As this umbrella review draws exclusively on secondary data from published sources, ethical approval is not required. Older adults, engaged as independent public contributors, have been involved in shaping the review protocol and will take part in interpreting the findings. Results will be disseminated through a peer-reviewed journal and presentations at academic and stakeholder conferences, and used to inform the design of a subsequent mixed-methods study focused on strengthening the involvement of older adults as active partners in research.

CRD420251064947.

## Full-text entities

- **Diseases:** DISSEMINATION (MESH:D009103)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

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## References

56 references — full list in the complete paper: https://tomesphere.com/paper/PMC13007083/full.md

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Source: https://tomesphere.com/paper/PMC13007083