# Risk Adjustment for Alzheimer Disease and Related Dementias in Medicare Advantage and Health Care Experiences

**Authors:** Wei Fu, Yuting Qian, Seyed M. Karimi, Hamid Zarei, Xi Chen

PMC · DOI: 10.1001/jamanetworkopen.2026.1796 · JAMA Network Open · 2026-03-13

## TL;DR

Adding Alzheimer's disease and related dementias to Medicare Advantage payment models improved care access and reduced financial burden for affected patients.

## Contribution

This study evaluates the impact of reinstating ADRD HCCs in Medicare Advantage on care experiences for beneficiaries.

## Key findings

- Reinstating ADRD HCCs led to a 6.6 percentage-point decline in care access difficulties.
- There was a 9.2 percentage-point decline in reported medical financial burden.
- No significant changes were observed in satisfaction with specialist access or care quality.

## Abstract

This cross-sectional study analyzes differences in health care experiences after the reinstatement of Alzheimer disease and related dementias (ADRD) hierarchical condition categories into the Medicare Advantage risk-adjusted payment model in 2020.

Was reinstating Alzheimer disease and related dementias (ADRD) hierarchical condition categories (HCCs) into the Medicare Advantage (MA) risk-adjusted payment model in 2020 associated with changes in care experiences for beneficiaries with ADRD?

In this cross-sectional study of 5353 MA observations (2015-2022), reinstating the ADRD HCC was associated with a 6.6 percentage-point decline in reported care access difficulties and a 9.2 percentage-point decline in reported medical financial burden, with no significant changes in satisfaction with specialist access and satisfaction with care quality.

These findings suggest that risk adjustment models that more accurately reflect the costs of complex chronic conditions may promote health equity.

Failure to account for the full complexity and costs of high-need populations in the risk-adjusted capitated payment model for Medicare Advantage (MA) plans may create financial disincentives for plans to invest in comprehensive care for affected beneficiaries, potentially exacerbating health disparities.

To evaluate the association of reinstatement of Alzheimer disease and related dementias (ADRD) hierarchical condition categories (HCCs) into the MA risk-adjusted payment model in 2020 with access, affordability, and quality of care for beneficiaries with ADRD.

This cross-sectional study examined a nationally representative sample of MA beneficiaries from the Medicare Current Beneficiary Survey (2015-2022). Beneficiaries with ADRD and those without ADRD but with comparable neurological diseases (stroke, paralysis, or Parkinson disease) before and after 2020 were included. Data analyses were performed between January and December 2025.

Reinstatement of the ADRD HCC into the MA risk adjustment formula in 2020.

Primary outcomes were accessibility of needed care, medical financial burden, satisfaction with specialist access, and satisfaction with quality of care. These outcomes were assessed using a difference-in-differences model to compare changes between the treatment and control group before and after the inclusion of ADRD HCCs in the MA risk adjustment model in 2020.

Among 5353 MA beneficiary observations (1239 [23.1%] aged 65-74 years; 3127 [58.4%] aged ≥75 years; 1785 male [33.3%]), 1629 (30.4%) reported a diagnosis of ADRD, and 3724 (69.6%) did not report an ADRD diagnosis. Compared with MA beneficiaries without ADRD, those with ADRD reported lower rates of difficulty accessing care (142 beneficiaries [8.7%] vs 394 beneficiaries [10.6%]) and medical financial burden (235 beneficiaries [19.3%] vs 740 beneficiaries [25.1%]), but slightly lower rates of satisfaction with specialist access (1384 beneficiaries [90.8%] vs 3267 [92.7%]) and care quality (1495 beneficiaries [92.8%] vs 3414 beneficiaries [93.0%]). Reintroducing ADRD HCCs into the MA risk-adjusted payment model was associated with a 6.62 percentage-point decrease in reporting any troubles accessing needed care (β = 0.06; 95% CI, −0.11 to −0.02; P = .005) and a 9.20 percentage-point decrease in reporting any medical financial burden (β = −0.09; 95% CI, −0.16 to −0.02; P = .009) among MA beneficiaries with ADRD. No significant association was observed for satisfaction with specialist access or with quality of care among MA beneficiaries with ADRD.

In this cross-sectional study of MA beneficiaries, reintroducing ADRD HCCs into the MA risk adjustment model was associated with improved care access and reduced financial burden among MA beneficiaries with ADRD. These findings suggest that risk adjustment that better reflects the costs of chronic, complex conditions may better align MA plan incentives with the needs of high-need populations and promote care equity.

## Linked entities

- **Diseases:** Alzheimer disease (MONDO:0004975), stroke (MONDO:0005098), Parkinson disease (MONDO:0005180)

## Full-text entities

- **Diseases:** Parkinson disease (MESH:D010300), ADRD (MESH:D000544), stroke (MESH:D020521), paralysis (MESH:D010243), neurological diseases (MESH:D020271), Dementias (MESH:D003704), ADRD HCC (MESH:D006528)

## Full text

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## Figures

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## References

30 references — full list in the complete paper: https://tomesphere.com/paper/PMC12988443/full.md

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Source: https://tomesphere.com/paper/PMC12988443