# One Eye Open: Reflections on Embedding Lived Experience in Sleep, Circadian Rhythms, and Mood Disorder Research

## TL;DR

This paper discusses how to meaningfully involve people with lived experience in mental health research, using a five-year study on sleep and mood disorders in youth as an example.

## Contribution

The paper presents a case study on embedding lived experience in research design and governance for youth mental health.

## Key findings

- Co-production with lived experience requires intentional governance and reflexive practices.
- Structural tensions and practical challenges arise in inclusion and power-sharing.
- Embedding lived experience enhances research relevance and translational impact.

## Abstract

The integration of lived experience within mental health research remains inconsistent, with many models positioning lived experience in advisory rather than embedded roles. This can limit meaningful engagement and reduce the relevance and translational impact of research.

Drawing on an ongoing five‐year Welcome Trust‐funded programme investigating sleep and circadian rhythm disturbances in youth‐onset mood disorders, this viewpoint reflects the development and function of a Lived Experience Working Group embedded within the Brain and Mind Centre's Youth Mental Health & Technology Team. Using this programme as a case study, we examine how co‐production is implemented across research design, governance, interpretation of findings, and knowledge dissemination.

We outline how co‐production is actioned and refined across the lifecycle of a complex research programme. We highlight lived experience contributions alongside relational and structural tensions, and practical challenges relating to inclusion, power‐sharing, scalability, and translation.

Embedding lived experience as a core form of expertise requires intentional governance structures, reflexive practices, and sustained institutional investment. This article offers practical and reflective guidance for researchers seeking to meaningfully integrate lived experience within youth mental health research.