# Guide to developing research recruitment strategies with the experts

## TL;DR

This paper describes a collaborative process to develop a recruitment strategy for neurological disease research with input from racially minoritised communities in the UK.

## Contribution

The novel contribution is a co-produced recruitment strategy that incorporates community insights to improve engagement and diversity in neurological disease research.

## Key findings

- Eight key strategy areas were identified to improve research recruitment, including cultural sensitivity and accessible information.
- Workshops revealed barriers like trust and communication, which informed the recruitment strategy.
- The co-production process emphasized the importance of involving patients and their families in research decisions.

## Abstract

The aim of this project was to work in partnership with people living with neurological diseases, from backgrounds that are racially minoritised in the UK, to co-produce a research recruitment strategy. Their experiences living with a neurological disease were vital to the co-production, plus their deep understanding of their community, culture and factors impacting engagement.

Six patient partners agreed to participate in three workshops that aimed to explore experiences of research, barriers and community concerns, culminating in ideas for strategies and actions to address the challenges.

Workshop 1 identified key issues around knowledge, communication, trust, shame and personal choice. Discussion and consensus in workshops 2 and 3 resulted in eight strategy areas: (1) Access to specialist clinics, (2) Setting up Patient and Public Involvement groups for specific studies or programmes, (3) Access to information on research, (4) Accessible and attractive information, (5) Incentives for participation in research, (6) Involving family members in decisions on research, (7) Communicating research outcomes and (8) Cultural sensitivity and diversity in the research team.

The process of co-production formulated a strategy to promote engagement and increase ethnic diversity within the context of neurological disease research. Modification and refinement for other areas and contexts is recommended, in partnership with people who live with the day-to-day experiences of specific diseases.