Living with multiple sclerosis: A qualitative exploration of death, dying and suicide, in UK adults

TL;DR

This study explores how living with Multiple Sclerosis in the UK affects people's thoughts about death and suicide, identifying key emotional and psychological factors.

Contribution

The study introduces a qualitative exploration of suicidal ideation in MS patients through the lens of the IMV suicide model.

Findings

The journey to diagnosis is a significant trigger for suicidal ideation among MS patients.

Experiences of loss and deprivation are linked to the transition into suicidal motivation.

The chronic and cyclical nature of MS is associated with feelings of entrapment and permanence.

Abstract

This qualitative study explored factors contributing to suicidal ideation among people living with Multiple Sclerosis (MS) using the Integrated Motivational-Volitional Model (IMV) of suicide as a theoretical framework. Sixteen participants were interviewed and data analysed using Framework Analysis. The analysis generated four core themes: Theme 1:’Journey to Diagnosis’, captured the difficulties faced by people with MS as they sought a diagnosis and how this could be a trigger point for suicidal ideation. Theme 2: ‘Loss and Deprivation’, captured the struggles and consequences of living with MS which was linked to the transition from the pre-motivational to motivational phase of the IMV. Theme 3: ‘Permanence’, captured the cyclical and chronic nature of MS and was linked to entrapment in the IMV. Finally, theme 4: ‘Death and Suicide’, captured perspectives on death, dying, and suicide and the factors linked to suicidal ideation.

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