# From pain to policy: Improving endometriosis awareness, diagnosis, and treatment

**Authors:** Alexandra Tosun

PMC · DOI: 10.1371/journal.pmed.1004981 · PLOS Medicine · 2026-03-02

## TL;DR

This paper highlights the need for better awareness, diagnosis, and treatment of endometriosis to improve women's health outcomes globally.

## Contribution

The paper emphasizes the importance of redefining endometriosis as a systemic disease to drive policy and funding changes.

## Key findings

- Endometriosis affects 190 million women but remains underdiagnosed and underfunded.
- Raising awareness and education is critical to addressing diagnostic delays and treatment gaps.
- Systemic recognition of endometriosis is needed to improve health equity and investment.

## Abstract

Despite affecting 190 million women worldwide, endometriosis remains underdiagnosed, under-researched, and underfunded. Tackling awareness gaps, diagnostic delays, and inadequate treatment requires earlier education, increased funding, and recognition of endometriosis as a systemic disease—redefining pain, equity, and investment in women’s health.

In recognition of Endometriosis Awareness Month, this Editorial by Alexandra Tosun discusses why raising awareness and education of endometriosis, as well as increasing funding and research for this systemic condition, are imperative to redefining pain, equity, and investment in women’s health.

## Linked entities

- **Diseases:** endometriosis (MONDO:0005133)

## Full-text entities

- **Diseases:** infertility (MESH:D007246), cardiovascular disease (MESH:D002318), pelvic pain (MESH:D017699), menstrual pain (MESH:D004412), adhesions (MESH:D000267), eating disorders (MESH:D001068), depression (MESH:D003866), abdominal bloating (MESH:D000007), genitourinary disorders (MESH:D014564), irritable bowel syndrome (MESH:D043183), anxiety (MESH:D001007), neoplasms (MESH:D009369), Endometriosis (MESH:D004715), pain (MESH:D010146), inflammatory (MESH:D007249), disease (MESH:D004194), systemic disease (MESH:D034721), autoimmune diseases (MESH:D001327), nausea (MESH:D009325)
- **Chemicals:** contraceptive pill (-), ibuprofen (MESH:D007052)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

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## References

14 references — full list in the complete paper: https://tomesphere.com/paper/PMC12952579/full.md

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Source: https://tomesphere.com/paper/PMC12952579