# Using Arts‐Based Methods to Involve People Living in Tower Hamlets With Multiple Long‐Term Conditions in the Development of Artificial Intelligence Tools in Healthcare Research

**Authors:** Elizabeth Remfry, Duncan J. Reynolds, Sylvia Morgado de Queiroz, Social Action for Health, Rohini Mathur, Michael R. Barnes, Alison Thomson

PMC · DOI: 10.1111/hex.70621 · Health Expectations : An International Journal of Public Participation in Health Care and Health Policy · 2026-03-01

## TL;DR

This paper explores using art-based methods to involve underrepresented communities in Tower Hamlets in the development of AI tools for healthcare research.

## Contribution

The study introduces arts-based methods as a novel approach to engage minoritised groups in AI healthcare research.

## Key findings

- Arts-based methods helped underrepresented individuals communicate research priorities related to long-term conditions.
- Visual arts made abstract AI concepts more tangible and increased AI literacy among participants.
- The approach highlighted the importance of local data and bias in AI model development.

## Abstract

Including public contributors in the development of artificial intelligence (AI) systems in healthcare research is growing, however, traditional methods of participation fail to engage people from minoritised groups. This work explores how we can utilise art‐based methods to involve the perspectives of those not previously included in AI development.

We collaborated with a East London‐based organisation to involve people not previously included in research to contribute to a study on multiple long‐term conditions (MLTCs) and polypharmacy. Patient and public involvement and engagement (PPIE) contributors all had lived experience of MLTCs and represented a range of different ages, genders, socio‐demographic backgrounds and multilingual abilities. We ran a series of six workshops that used different visual arts methods; ceramics, collage, body mapping and AI‐generated images, to create research priorities and to inform AI development.

The arts‐based methods served as a platform for communication which supported PPIE contributors to develop multiple research priorities, for example the impact of the lack of routine appointments on MLTCs. Through these workshops PPIE contributors also highlighted concepts that are important to consider during AI model development, such as utilising local housing data and considering bias. Visual images and art helped to facilitate different forms of communication, whilst being fun and engaging and provided a way to make abstract AI concepts more tangible whilst building AI literacy.

Arts‐based methods were a useful tool to make involvement in research more accessible for under‐represented communities in the development of AI tools in healthcare research. There is a need for more inclusive participatory approaches as the use of AI in healthcare and research increases.

Working with staff and interpreters from a local community‐based charity, Social Action for Health, we invited 22 PPIE contributors from under‐represented communities in Tower Hamlets who had no previous experience of PPIE research. PPIE contributors developed the research priorities for a large academic consortia and helped create a community art exhibition to highlight their artwork. Additionally, two experienced PPIE contributors from the wider AI‐Multiply study assisted with the preparation of this manuscript.

## Full-text entities

- **Genes:** EREG (epiregulin) [NCBI Gene 2069] {aka EPR, ER, Ep}
- **Diseases:** cancer (MESH:D009369), diabetes (MESH:D003920), fibromyalgia (MESH:D005356), mental illness (MESH:D001523), CD (MESH:D003424), premature death (MESH:D003643), pain (MESH:D010146), MLTCs (MESH:D000088562), dementia (MESH:D003704), gestational diabetes?Can (MESH:D016640), AI (MESH:C538142), Type 2 Diabetes (MESH:D003924)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

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## Figures

7 figures with captions in the complete paper: https://tomesphere.com/paper/PMC12950819/full.md

## References

65 references — full list in the complete paper: https://tomesphere.com/paper/PMC12950819/full.md

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Source: https://tomesphere.com/paper/PMC12950819