# “Every day is a battle against Parkinson’s”—a qualitative study on older adults at the long-term care facilities in Chennai

## TL;DR

This study explores the lived experiences of older adults with Parkinson’s disease in long-term care facilities in Chennai, highlighting their emotional, functional, and social challenges.

## Contribution

The study provides novel qualitative insights into the psychosocial experiences of Parkinson’s patients in long-term care settings, emphasizing the need for tailored support systems.

## Key findings

- Six key themes were identified, including identity, emotional distress, and the importance of family support.
- Perceived autonomy and social support were crucial for psychosocial well-being among participants.
- Healthcare professionals and policymakers must address multifaceted challenges through tailored strategies.

## Abstract

Parkinson’s disease is the second most common progressive neurodegenerative disorder affecting both motor and non-motor functions, with men showing higher susceptibility. It comprises unilateral and axial symptoms leading to severe functional disability. Also, there are numerous unexplored symptoms, since Parkinson’s is called “Snowflake Disease.”

The objective of the study is to explore and understand life after Parkinson’s disease in older adults living in long-term care facilities.

A descriptive qualitative study utilizing purposive sampling was conducted among 22 older adults with Parkinson’s disease (PD) aged 60 to 89 years (±74.5). In-depth interviews were conducted, with six older adults excluded due to fatigue and cognitive problems. The final sample of 16 interviews achieved data saturation and is potentially valid for analysis.

A thematic analysis was conducted, resulting in the identification of six principal themes: (1) Identity and Self-perception, (2) Emotional Dysphoria, (3) Neurofunctional Impact, (4) Acclimatization to Therapy, (5) Need for Support Network, and (6) Existential Reflection. The findings illustrate the crucial importance of perceived autonomy and family support in the process of attaining psychosocial well-being.

It indicates the interplay of factors influencing older adults with Parkinson’s disease in long-term care facilities. It also underscores the crucial role of healthcare professionals, policymakers, and caregivers in designing tailored strategies for multifaceted challenges associated with Parkinson’s disease.