Interaction of self-efficacy and sense of personal control on diabetes distress in older adults with type 2 diabetes: a cross-sectional study
Zhaoxia Tian, Xia Ren, Quanyi Wang, Wenke Guo, Hongmei Li, Linping Shang

TL;DR
This study explores how self-efficacy and personal control affect diabetes distress in older adults with type 2 diabetes.
Contribution
The study identifies new intervention strategies by examining the interplay between personal mastery and self-efficacy in alleviating diabetes distress.
Findings
59.06% of older adults with T2DM experienced distress.
Low self-efficacy and personal mastery scores were significant risk factors for diabetes distress.
The interplay between self-efficacy and personal control offers new intervention strategies for alleviating diabetes distress.
Abstract
Diabetes distress (DD) constitutes a significant barrier to effective diabetes management, impacting self-care behaviors and complication incidence rates. It directly influences quality of life and healthcare resource utilization among gerontal patients. Research on alleviating DD offers a novel perspective for developing personalized self-management plans in clinical practice. This cross-sectional study randomly selected 342 older adults with type 2 diabetes registered at community hospitals. Factors influencing disease distress were assessed using a demographic questionnaire, Diabetes Distress Scale (DDS), Personal Mastery Scale (PMS), General Self-Efficacy Scale (GSES), and Diabetes Self-Management Behavior Scale (DSMB-O). Structural equation modeling was employed for moderated mediation analysis. Findings revealed that 59.06% of older adults with T2DM experienced distress.…
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Figure 1| Related factors | Number of cases | Distress | No distress | χ2 |
| |||
|---|---|---|---|---|---|---|---|---|
| Number of cases | Percentage | Number of cases | Percentage | |||||
| Gender | Male | 167 | 77 | 46.11 | 90 | 53.89 | 22.66 | 0.000** |
| Female | 175 | 125 | 71.43 | 50 | 28.57 | |||
| Duration of illness | >10 years | 94 | 36 | 38.30 | 58 | 61.70 | 23.121 | 0.000** |
| <10 years | 248 | 166 | 66.94 | 82 | 33.06 | |||
| Marital status | Married | 228 | 128 | 56.14 | 100 | 43.86 | 2.419 | 0.120 |
| Divorced or unmarried | 114 | 74 | 64.91 | 40 | 35.09 | |||
| Living arrangements | Living with family | 191 | 79 | 41.36 | 112 | 58.64 | 56.073 | 0.000** |
| Living alone | 151 | 123 | 81.46 | 28 | 18.54 | |||
| Educational attainment | Elementary school and below | 164 | 132 | 80.49 | 32 | 19.51 | 59.814 | 0.000** |
| Junior high school and above | 178 | 70 | 39.33 | 108 | 60.67 | |||
| Treatment method | Oral medication | 222 | 130 | 58.56 | 92 | 41.44 | 0.073 | 0.964 |
| Insulin injection | 78 | 47 | 60.26 | 31 | 39.74 | |||
| Oral + insulin injection | 42 | 25 | 59.52 | 17 | 40.48 | |||
| Complications | None | 27 | 18 | 66.67 | 9 | 33.33 | 1.972 | 0.373 |
| 1 type | 75 | 48 | 64.00 | 27 | 36.00 | |||
| 2 or more | 240 | 136 | 56.67 | 104 | 43.33 | |||
| Per capita household income | ≥5,000 yuan | 87 | 24 | 27.59 | 63 | 72.41 | 47.818 | 0.000** |
| Less than 5,000 yuan | 255 | 178 | 69.80 | 77 | 30.20 | |||
| PMS score | ≥20 points | 171 | 81 | 47.37 | 90 | 52.63 | 19.349 | 0.000** |
| <20 points | 171 | 121 | 70.76 | 50 | 29.24 | |||
| GSES score | ≥30 points | 138 | 54 | 39.13 | 84 | 60.87 | 38.022 | 0.000** |
| <30 points | 204 | 148 | 72.55 | 56 | 27.45 | |||
| Variable |
| SE | Wald |
| Odds ratio | 95% CI |
|---|---|---|---|---|---|---|
| Gender | 0.513 | 0.301 | 2.909 | 0.088 | 1.670 | 0.926–3.010 |
| Duration of illness | 1.181 | 0.329 | 12.869 | 0.000 | 3.258 | 1.709–6.212 |
| Housing Conditions | 1.592 | 0.314 | 25.650 | 0.000 | 4.912 | 2.653–9.094 |
| Educational attainment | −1.639 | 0.303 | 29.293 | 0.000 | 0.194 | 0.107–0.352 |
| Per capita household income | 1.432 | 0.345 | 17.200 | 0.000 | 4.185 | 2.128–8.233 |
| PMS score | 0.828 | 0.302 | 7.514 | 0.006 | 2.290 | 1.266–4.140 |
| GSES score | 0.887 | 0.307 | 8.323 | 0.004 | 2.428 | 1.329–4.435 |
| Fit measure | Reference standard | Observed value |
|---|---|---|
| χ2/df | 1–3: Excellent, 3–5: Good | 2.285 |
| RMSEA | <0.05: Excellent, <0.08: Good | 0.061 |
| GFI | >0.9: Excellent, >0.8: Good | 0.844 |
| AGFI | >0.9: Excellent, >0.8: Good | 0.816 |
| IFI | >0.9: Excellent, >0.8: Good | 0.951 |
| TLI | >0.9: Excellent, >0.8: Good | 0.945 |
| CFI | >0.9: Excellent, >0.8: Good | 0.950 |
| PCFI | >0.5 | 0.865 |
| PNFI | >0.5 | 0.833 |
| Path relationship | Estimate | S. E. | C. R. |
| ||
|---|---|---|---|---|---|---|
| Self-management | ← | Self-Efficacy | 0.158 | 0.019 | 2.788 | 0.005 |
| Self-management | ← | General Sense of Control | 0.283 | 0.014 | 4.912 | *** |
| Diabetes pain | ← | Self-Efficacy | −0.161 | 0.086 | −2.869 | 0.004 |
| Diabetes distress | ← | Self-Management | −0.134 | 0.258 | −2.442 | 0.015 |
| Diabetes suffering | ← | General Sense of Control | −0.268 | 0.066 | −4.545 | *** |
| GSES10 | ← | Self-Efficacy | 0.796 | |||
| GSES9 | ← | Self-Efficacy | 0.812 | 0.059 | 17.107 | *** |
| GSES8 | ← | Self-Efficacy | 0.801 | 0.062 | 16.792 | *** |
| GSES7 | ← | Self-Efficacy | 0.831 | 0.061 | 17.638 | *** |
| GSES6 | ← | Self-Efficacy | 0.797 | 0.061 | 16.679 | *** |
| GSES5 | ← | Self-Efficacy | 0.774 | 0.062 | 16.021 | *** |
| GSES4 | ← | Self-Efficacy | 0.795 | 0.062 | 16.608 | *** |
| GSES3 | ← | Self-efficacy | 0.840 | 0.059 | 17.917 | *** |
| GSES2 | ← | Self-Efficacy | 0.810 | 0.061 | 17.045 | *** |
| GSES1 | ← | Self-Efficacy | 0.806 | 0.060 | 16.925 | *** |
| PMS7 | ← | General sense of control | 0.787 | 0.054 | 17.300 | *** |
| PMS6 | ← | General sense of control | 0.806 | 0.055 | 17.934 | *** |
| PMS5 | ← | General sense of control | 0.829 | 0.051 | 18.745 | *** |
| PMS4 | ← | General sense of control | 0.806 | 0.054 | 17.936 | *** |
| PMS3 | ← | General sense of control | 0.835 | 0.053 | 18.946 | *** |
| PMS2 | ← | General sense of control | 0.799 | 0.054 | 17.688 | *** |
| PMS1 | ← | General sense of control | 0.838 | |||
| Reduced risk of complications | ← | Self-Management | 0.973 | |||
| Active coping | ← | Self-Management | 0.972 | 0.082 | 51.839 | *** |
| Managing hypoglycemia | ← | Self-Management | 0.755 | 0.144 | 20.201 | *** |
| Blood glucose monitoring | ← | Self-Management | 0.768 | 0.138 | 21.015 | *** |
| Pharmacotherapy | ← | Self-Management | 0.756 | 0.151 | 20.273 | *** |
| Healthy eating | ← | Self-Management | 0.821 | 0.115 | 24.784 | *** |
| Active exercise | ← | Self-Management | 0.830 | 0.116 | 25.552 | *** |
| Interpersonal relationship-related distress | ← | Diabetes-related suffering | 0.922 | |||
| Doctor-related suffering | ← | Diabetes-Related Suffering | 0.941 | 0.031 | 32.478 | *** |
| Pain related to daily routine | ← | Diabetes-related suffering | 0.938 | 0.031 | 32.091 | *** |
| Emotional burden | ← | Diabetes Suffering | 0.948 | 0.031 | 33.390 | *** |
| Path relationship | Effect | Boot SE | BootLLCI | BootULCI | z |
|
|---|---|---|---|---|---|---|
| Self-efficacy → Self-management → Diabetes distress | −0.081 | 0.020 | −0.096 | −0.022 | −4.150 | 0.000 |
| General sense of control → Self-management → Diabetes distress | −0.066 | 0.022 | −0.104 | −0.020 | −3.037 | 0.002 |
| Chain mediation | Effect | Boot SE | BootLLCI | BootULCI | z |
|
|---|---|---|---|---|---|---|
| General sense of control → Self-efficacy → Diabetes distress | −0.057 | 0.021 | −0.094 | −0.014 | −2.760 | 0.006 |
| General sense of control → Self-management → Diabetes distress | −0.048 | 0.018 | −0.082 | −0.011 | −2.611 | 0.009 |
| General sense of control → Self-efficacy → Self-management → Diabetes distress | −0.009 | 0.004 | −0.018 | −0.001 | −2.112 | 0.035 |
| Self-efficacy → General sense of control → Diabetes distress | −0.118 | 0.024 | −0.130 | −0.037 | −4.922 | 0.000 |
| Self-efficacy → Self-management → Diabetes distress | −0.038 | 0.015 | −0.061 | −0.003 | −2.527 | 0.012 |
| Self-efficacy → General sense of control → Self-management → Diabetes distress | −0.020 | 0.005 | −0.023 | −0.004 | −4.064 | 0.000 |
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Taxonomy
TopicsDiabetes Management and Education · Chronic Disease Management Strategies · Mobile Health and mHealth Applications
Introduction
Given the lifelong nature of Type 2 diabetes mellitus (T2DM), patients face complex medical and disease-specific information (1), including managing chronic conditions, related symptoms, and complications. They also require high proficiency in sustained care activities throughout the disease course, such as adhering to medication regimens, regularly monitoring blood glucose levels, adjusting diets, following exercise plans, and implementing lifestyle changes. Research indicates that adults with type 2 diabetes exhibit significant deficiencies in self-management capabilities (2). Approximately 38% do not engage in daily exercise or foot care, 55% fail to follow dietary guidelines, and over one-third demonstrate poor adherence to diabetes medications. However, this persistent burden of disease management may trigger emotional responses such as anxiety and frustration in patients. Diabetes distress (DD) impacts patients’ perceptions of available support, emotional burden, and access to quality healthcare.
Research indicates that over half of people with diabetes experience emotional burden and stress related to their condition (3). Older patients face an even greater psychological burden, with approximately 40% of seniors experiencing more severe DD due to difficulties effectively managing their diabetes. This significantly impacts disease control, outcomes, and overall quality of life (4). Clinical data indicate that high levels of DD can elevate glycated hemoglobin by up to 1.2%. As DD-related complications and mortality rates rise, psychological interventions within treatment activities can no longer be overlooked. The severity of DD correlates significantly with multiple factors: personal factors include personality traits, coping mechanisms, and support networks; social factors encompass socioeconomic status, access to healthcare, and cultural influences (5). Management of DD depends on individual needs and intrinsic motivation (6).
Self-efficacy exhibits a bidirectional negative relationship with DD. Enhanced self-efficacy significantly reduces patients’ negative emotional responses, further promoting effective self-management of diabetes among older adults and improving their overall quality of life (7). Conversely, the emotional burden of DD consumes cognitive resources, diminishes patients’ confidence in executing self-management, and weakens self-efficacy. Research indicates that for every one-unit increase in distress, self-efficacy declines by 23% (8). Consequently, low self-efficacy has been identified as a risk factor for distress (9).
The sense of personal control, as a protective psychosocial resource, significantly influences the incidence of severe complications and the likelihood of hospitalization and premature mortality, reflecting an individual’s coping level with chronic illness (10). Particularly when poorly controlled type 2 diabetes progresses from oral medications to insulin therapy, patients often exhibit low engagement with the injection regimen, perceive themselves as having little control over T2D, and lack motivation for self-management due to perceived failure to achieve treatment goals (11). Conversely, patients with higher self-management competence can fully mobilize intrinsic psychological resources such as optimism and resilience to cope with psychological distress, thereby mitigating its negative impact.
Cognitive Social Theory (12) as a core theoretical framework for explaining the interaction between individual psychology and behavior, provides crucial theoretical support for understanding the relationship between self-efficacy, perceived personal control, and diabetes distress among gerontal patients with type 2 diabetes. This theory emphasizes the dynamic interplay between an individual’s cognitive processes (such as beliefs, expectations, and attributions), their social environment, and behavioral outcomes. Individuals are not passive recipients of environmental stimuli but actively regulate their behavior and emotional responses through perceptions of their own capabilities (self-efficacy), beliefs about controlling behavioral outcomes (personal control), and cognitive interpretations of their social environment. Within the diabetes management context, Cognitive Social Theory posits that patients’ cognitive appraisals of management tasks (e.g., ‘Do I possess the capacity to perform blood glucose monitoring?’;‘Can my actions effectively control my condition?’), feedback from social support networks including family and healthcare professionals, and accumulated experience in disease management collectively shape their self-efficacy and personal control. These factors subsequently influence the implementation of self-management behaviors and the emergence of diabetes distress.
High self-efficacy is associated with lower negative emotional responses in patients, and is linked to more effective self-management behaviors and higher overall quality of life. From a cognitive-social perspective, patients with high self-efficacy develop the cognitive belief that ‘they possess the capacity to manage diabetes challenges’ based on prior successful disease management experiences or positive feedback from healthcare professionals. This positive cognition encourages them to maintain proactive behavioral tendencies when confronting complex management tasks such as dietary control and regular exercise, thereby reducing anxiety and frustration arising from task difficulty. Conversely, the emotional burden of diabetes depletes cognitive resources, undermining patients’ confidence in executing self-management. This fosters negative cognitions of ‘inability to cope,’ thereby diminishing self-efficacy.
Personal sense of control, as the core manifestation of “beliefs about control” within cognitive social theory, constitutes a protective psychosocial resource. It exhibits significant correlations with the incidence of severe complications, likelihood of hospitalization, and premature mortality rates, reflecting an individual’s capacity to manage chronic disease. According to cognitive social theory, personal sense of control stems from an individual’s perception of the ‘behavior-outcome’ relationship: when patients perceive that their self-management behaviors (such as adhering to medication schedules and maintaining a healthy diet) can effectively control blood glucose levels and reduce complication risks, they develop positive control beliefs that their condition is manageable. Conversely, if they are unable to improve their condition through their own actions over the long term, or lack a clear understanding of disease progression, they develop a sense of loss of control. Particularly when poorly controlled type 2 diabetes progresses from oral medication to insulin therapy, patients often experience heightened negative cognition that ‘the condition is beyond their control’ due to unfamiliarity with the injection regimen and uncertainty about treatment efficacy. This frequently manifests as low adherence to the injection plan and diminished motivation for self-management. Conversely, patients with higher self-management capacity, grounded in the cognitive belief that their condition is controllable, can fully mobilize internal psychological resources (such as optimism and resilience) to cope with psychological distress, thereby mitigating its negative impact.
Research reveals that the essence of DD stems from an imbalance between disease demands and self-management capacity. From the perspective of cognitive social theory, the core of this imbalance lies in the mismatch between patients’ cognitive assessments and their disease management needs. When gerontal patients face complex disease management challenges, such as insulin regulation, dietary calculations, and complication monitoring, the absence of essential psychological resources (Self-efficacy and cognitive beliefs) may create a vicious cycle where the psychological burden of diabetes interacts with disease demands. This can negatively impact self-care behaviors and overall well-being (13).
Against this backdrop, exploring protective mechanisms for psychological behavior has emerged as a novel avenue for overcoming challenges. Guided by cognitive social theory, this study proposes a theory-driven hypothetical model to investigate the path relationships between self-efficacy, personal sense of control, self-management, and diabetic distress. Given the cross-sectional design of this research, the model cannot be validated by the data and serves solely to estimate path coefficients within the hypothetical framework.
H1: Self-efficacy significantly negatively predicts diabetes distress.
H2: Personal sense of control significantly negatively predicts diabetes distress.
H3: Self-efficacy significantly positively predicts self-management behaviors.
H4: Personal sense of control significantly positively predicts self-management behaviors.
H5: Self-management behaviors significantly negatively predict diabetes distress.
H6: Self-management behaviors mediate the relationship between self-efficacy and diabetes distress.
H7: Self-management behaviors mediate the relationship between personal control and diabetes distress.
H8: Self-efficacy and personal control indirectly influence diabetes distress via chained pathways (self-efficacy→personal control→self-management behaviors; personal control→self-efficacy→ self-management behaviors).
This model is grounded in the following literature: our selection of self-efficacy and personal sense of control as antecedents to diabetic distress is based on randomized controlled trials demonstrating that these factors predict changes in diabetic distress levels (14, 15). According to cognitive social theory, self-efficacy and personal control influence psychological adaptation precisely because they first enhance self-management behaviors; without modeling this pathway, the intermediate process would remain fragmented (16). Ji (17) research indicates that self-efficacy and personal sense of control may exhibit a dynamic, mutually beneficial chain relationship. Therefore, the model captures the conditional process whereby they empower behavioral improvements to alleviate diabetes distress (4). Nevertheless, this study cannot establish a causal relationship between self-efficacy, personal sense of control, and diabetes distress.
Methods
Study design
This study employs a cross-sectional design to explore factors influencing diabetes distress among gerontal T2DM patients and their interactions with self-efficacy and personal sense of control.
Sample/participants
A total of 342 gerontal T2DM patients registered at a community hospital between December 2023 and December 2024 were selected (Total number of visitors: 480 Actual number of participants: 376 Participation rate: 78.3%). Inclusion criteria: (1) Diagnosis of T2DM; (2) Age ≥60 years; (3) Disease duration ≥6 months; (4) Clear consciousness and communication ability. Exclusion criteria: (1) Severe language impairment or cognitive dysfunction; (2) Concurrent critical illness or malignancy; (3) Other types of diabetes. According to the SEM sample size calculation method, the sample size should be 5 to 10 times the number of observed variables. This study has 48 observed variables. Considering a 20% non-response rate, the required sample size ranges from 288 to 576. The study obtained an effective sample size of 342 cases, which is sufficient to meet the model fitting requirements.
Instruments
A combination of electronic record retrieval and face-to-face follow-up was employed to survey enrolled patients using the following four scales: (1) General Information Questionnaire, including gender, age, disease duration, marital status, living conditions, educational attainment, treatment modality, complications, and per capita monthly household income. (2) Diabetes Distress Scale (DDS): Comprising four dimensions—interpersonal distress, physician-related distress, routine-related distress, and emotional burden—with 17 items scored from 1 to 6. A mean total score of 3 or higher indicates clinical disease distress. Cronbach’s alpha coefficient: 0.967. (3) Personal Mastery Scale (PMS): 7 questions scored 1–5 points each, total range 7–35 points. Score ≥20 indicates good personal mastery; score <20 indicates poor personal mastery. Cronbach’s alpha coefficient: 0.932. (4) General Self-Efficacy Scale (GSES): Consists of 10 questions scored from 1 to 4 points each, yielding a total score range of 10 to 40 points. A score ≥30 indicates good self-efficacy, while a score <30 indicates low self-efficacy. Cronbach’s alpha coefficient: 0.949. (5) Diabetes Self-Management Behavior Scale (DSMB-O): Includes 7 dimensions: active exercise, healthy diet, medication adherence, blood glucose monitoring, managing hypoglycemia, positive coping, and reducing complication risks: 14 items. Total score range: 0–30 points. Higher scores indicate better diabetes self-management behavior. Cronbach’s alpha coefficient: 0.944.
Data collection
All questionnaires were uniformly distributed and explained by two nurses. If patients struggled to complete the forms independently, the two nurses provided guidance to ensure the quality of all completed surveys, which were then collected, statistically compiled, and organized. This study distributed 376 questionnaires. After excluding 34 invalid questionnaires containing missing or erroneous entries, 342 valid questionnaires were recovered, yielding a valid response rate of 90.9%.
Data analysis
Data were analyzed using SPSS 21.0 software. Count data were expressed as percentages (%), and chi-square tests were performed. Multivariate logistic regression analysis was used to examine factors influencing disease distress in gerontal T2DM patients. Statistical analysis of inferential mediating pathways in structural equation modeling under hypothetical frameworks.
Results
Univariate analysis of disease distress in older adults with type 2 diabetes
The mean disease distress score among older adults with type 2 diabetes was 60.56 ± 23.61 points. Univariate analysis revealed significant associations between disease distress and the following factors: female gender (χ^2^ = 22.66), longer disease duration (χ^2^ = 23.12), living alone (χ^2^ = 56.07), lower educational attainment (χ^2^ = 59.81), lower household income (χ^2^ = 47.82), higher PMS scores (χ^2^ = 19.35), and higher GSES scores (χ^2^ = 38.02), PMS scores (χ^2^ = 19.35), and GSES scores (χ^2^ = 38.02) were significantly associated with diabetes distress. These factors were therefore selected for inclusion in subsequent multivariate analysis models (Table 1).
Multivariate logistic regression analysis of disease distress in older adults with type 2 diabetes
Regression analysis revealed that short disease duration (β = 1.181), living alone (β = 1.592), low educational attainment (β = −1.639), low household income (β = 1.432), low PMS score (β = 0.828), and low GSES score (β = 0.887) were independent predictors of suffering in gerontal diabetic patients (Table 2).
Structural equation modeling of disease-related distress in gerontal patients with type 2 diabetes mellitus
In the structural equation model fit assessment, the absolute fit index χ^2^/df stands at 2.285, indicating a balanced equilibrium between model complexity and fit (Figure 1). The RMSEA value of 0.061 suggests the model’s approximation error remains within acceptable limits, while the GFI of 0.844 demonstrates overall satisfactory data fit. All relative fit indices achieved excellent levels in empirical testing. The IFI, TLI, and CFI (0.951, 0.945, 0.950) confirm that the model’s relative fit and explanatory power are both excellent, effectively supporting the testing of research hypotheses. The actual values of PNFI and PCFI are also significantly above 0.5, indicating that the model maintains high fit while possessing good parsimony. This demonstrates that the structural equation model constructed in this test exhibits good model fit (Table 3).
Structural equation model of disease distress in gerontal type 2 diabetes patients. The pathways depicted in the figure should be regarded as exploratory findings rather than validation of causal mechanisms.
The path relationship test results of the structural equation model indicate that all hypothesized paths proposed in this study reached the level of statistical significance (p < 0.05). Specifically, significant negative relationships were found between self-efficacy (−0.16), general sense of control (−0.27), self-management (−0.13), and distress among gerontal diabetic patients. These factors can alleviate the perception of disease distress (Table 4).
This study employed a bootstrapping method with 5,000 iterations to calculate 95% confidence intervals, thereby further validating the mediating effects. Results indicate that the indirect effects of self-management were significant across all path relationships. Self-efficacy and general sense of control can directly influence diabetes distress and also exert indirect effects through the mediating variable of self-management (Table 5).
This study employed the Bootstrap method to construct a chained mediation model, conducting 5,000 repeated samples and calculating 95% confidence intervals. General sense of control indirectly influences diabetes distress through self-efficacy (Effect = −0.057), self-management (Effect = −0.048), and the dual chained path “self-efficacy→self-management” (Effect = −0.009). Self-efficacy also indirectly influences diabetes distress through general sense of control (Effect = −0.118), self-management (Effect = −0.038), and the chained path “general sense of control→ self-management” (Effect = −0.020). The confidence intervals for all three paths did not include zero, indicating significant mediating effects (Table 6).
Discussion
Current status of disease burden in older adults with type 2 diabetes
The INTERPRET-DD and DAWN studies demonstrated that diabetes distress warrants global attention (18). Studies indicate varying prevalence rates across countries and regions. A meta-analysis of DD prevalence among US T2D individuals reported rates ranging from 19 to 79.5% (19). A cross-sectional study of South Asian Canadians revealed a high prevalence of 52.5% (20). Furthermore, DD tends to worsen over time (16, 21), and there is a significant gap in meeting patients’ mental health care needs (22). Personalized interventions are particularly crucial for alleviating distress at different stages of the disease and addressing diverse psychological needs. Research indicates that order participants receiving personalized interventions experience greater reductions in distress than younger participants (23), demonstrating that focusing on reducing distress among order diabetes patients holds significant clinical importance and yields notable outcomes.
Factors influencing disease distress in older adults with type 2 diabetes
This study reveals that in sociodemographic surveys, living alone, long disease duration, low educational attainment, and low household income are risk factors for DD in older adults with T2DM. Patients living alone experienced higher distress levels than those with family support, consistent with findings by Li Wen (24) and others. For Chinese individuals with strong family-centered values, losing this vital support channel prevents them from gaining emotional support and coping strategies through family functions. This leaves patients feeling helpless and exhausted when confronting complex management scenarios alone. Studies on the impact of disease duration on DD remain inconclusive. This research found that patients with longer disease duration experience increased fear of complications and stigmatization, coupled with the burden of prolonged self-care, leading to management neglect and a sense of loss of control as the disease progresses. Luzuriaga et al. (25) also found that patients with long-standing diabetes may experience greater distress. Conversely, some studies suggest that patients with longer disease duration have attained self-care levels through improved disease cognition and management skills, established blood glucose-maintaining habits, developed complication monitoring abilities, and achieved medication adherence, resulting in relatively lower distress levels (26). This may relate to the continuity of healthcare access and individual knowledge acquisition among the selected study subjects. Educational attainment is an independent risk factor for diabetes distress. Lower educational levels increase patients’ disease distress, consistent with findings by Li et al. (27). This may stem from patients’ greater reliance on non-professional sources (e.g., friends’ or relatives’ experiences), difficulties in understanding self-management knowledge (e.g., diet, exercise, medication), and lack of effective emotional regulation strategies. Lower household income correlates with higher disease distress. As a lifelong metabolic disorder, diabetes requires long-term medication and continuous monitoring. Some patients necessitate high-cost treatments like insulin or rapid-acting insulin. However, prolonged, substantial treatment expenses often trap low-income patients in a “cost-compliance” dilemma, leading to reduced or discontinued medication. This undermines glycemic control and exacerbates psychological distress. Notably, multivariate regression analysis revealed no direct association between gender and diabetes distress, consistent with Chen Y-C’s findings (23). However, Tesfa research suggests that (24, 28, 29). Women are more prone to diabetes-related issues, possibly due to differences in emotional expression between genders or variations in physiological hormones, which may lead women to exhibit higher levels of anxiety. The impact of gender on distress among gerontal type 2 diabetes patients remains unclear, and further well-powered studies are warranted to clarify its effect.
Interaction between self-efficacy, general sense of control, and disease distress
This study’s path analysis aligns with theoretical assumptions. Self-efficacy and personal sense of control may independently influence diabetes distress, while also exerting indirect effects through the mediating variable of self-management. However, owing to the cross-sectional design, only path strengths within the hypothesized model can be assessed. Consequently, the mediation analysis in this study should be regarded as exploratory rather than confirmatory.
Strong self-efficacy and a greater sense of personal control are both significantly associated with lower levels of distress among individuals with diabetes. Enhanced self-efficacy markedly diminishes negative emotional responses in patients, consistent with findings from Niko Verdecias et al. (30). High self-efficacy as an individual’s belief, judgment, or subjective perception regarding diabetes management, typically mobilizes positive emotions and motivates patients to proactively seek medical assistance. Furthermore, self-efficacy serves as a crucial predictor for improved diabetes self-management (31). It further catalyzes the transition toward self-management behaviors, prompting patients to adopt effective coping strategies, adhere to treatment plans, and maintain resilience to alleviate distress, thereby enhancing the well-being of both patients and their support networks (32). The theoretical pathway of this study posits that personal control serves as a protective factor in diabetes management, enabling better control of chronic conditions requiring self-management. As self-management demands grow more complex and burdensome, control appears increasingly effective (11). Enhancing individuals’ perceived control over their disease, particularly when medication regimens require adjustment, may foster greater insight to improve patient engagement and adherence. Individuals with higher levels of perceived control are more likely to engage in better self-management, develop health-promoting beliefs, participate in community health education, and even learn to use smart devices to assist in management.
The path hypothesis posits that self-efficacy and general sense of control exhibit both synergistic effects and partial mediating chain effects. Synergy may arise from their shared psychological mechanisms, both mobilizing patients’ positive attitudes and beliefs toward disease management. This fosters self-management behaviors, enhancing confidence and capability to execute health actions such as personalized consultations, dietary modifications, structured physical exercise, and stress management techniques (33). This positive belief is significantly associated with alleviating negative emotions such as anxiety and depression, as well as psychological distress (34), also encourages patients to actively participate in diabetes treatment decisions, seek medical resources and social support, and improve quality of life. Partial mediation occurs by enhancing patients’ perceived control over their disease, thereby boosting self-efficacy, reducing feelings of helplessness in treatment, significantly increasing confidence in successfully establishing self-management support systems, and indirectly alleviating distress through positive behavioral feedback such as improved HbA1c levels. Patients’ confidence in self-management can significantly enhance their subjective sense of control over symptoms by increasing their proactive involvement in disease management. This, in turn, drives the establishment and implementation of management behaviors, such as independently seeking community education, thereby alleviating the distress associated with diabetes.
In summary, the factors contributing to the suffering associated with diabetes are multifaceted, and path estimates within the hypothetical model reveal partial mediating effects. When developing clinical treatment and lifelong management plans, psychological interventions should be integrated into care protocols. For instance, cognitive behavioral therapy and other interventions can facilitate the construction of multidimensional self-management systems, enhance patients’ resilience against the disease, maintain stable internal bodily environments, and reduce the risk of long-term complications. Concurrently, this approach improves the efficiency of healthcare resource utilization and alleviates the societal burden of medical care.
Conclusion
This study demonstrates that self-efficacy, general sense of control, and demographic factors (longer disease duration, living alone, lower education level, lower household income) predict disease distress in gerontal T2MD patients. Within the theoretical framework, self-efficacy and general sense of control may be associated with perceived illness distress either independently or indirectly via the mediating pathway of enhanced self-management. Furthermore, the chain-like interactive relationship between self-efficacy and sense of control offers a novel perspective for elucidating the underlying mechanisms influencing illness distress. This provides precise targets for designing phased intervention programs, stimulating intrinsic motivation, and alleviating emotional burdens stemming from fear of complications and cumbersome management.
Limitations
Due to the selection of an order population, patients had already established partial disease management patterns. This study could not clarify whether self-efficacy and personal sense of control could still yield positive outcomes when diabetes distress scores were excessively high. Future research may explore these variables to further refine the interplay among the three factors. Furthermore, as this study employs a cross-sectional design, the mediating pathway should be regarded as an exploratory finding. Its causal nature requires further validation through longitudinal or experimental designs in future research.
The reference list from the paper itself. Each links out to its DOI / PubMed record.
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