# Components of Service Delivery Models of Care for the Detection, Care and Management of Visual Impairment for Children with Cerebral Visual Impairment: A Scoping Review Protocol

**Authors:** Lauren R. Hepworth, Ffion Curtis, Michelle Maden, Cathy Williams, John Ravenscroft, Shelley Robinson, Brinton Helliwell, Charlotte Croft, Andrew Hill, Ruaraidh Hill, Catrin Tudur Smith, Fiona J. Rowe

PMC · DOI: 10.22599/bioj.498 · The British and Irish Orthoptic Journal · 2026-02-10

## TL;DR

This study aims to map out how children with brain-related visual impairments are assessed and supported through various healthcare and education services.

## Contribution

The novel aspect is the systematic identification of service delivery components for cerebral visual impairment in children, filling a gap in international guidelines.

## Key findings

- There is a lack of standardized clinical guidelines for cerebral visual impairment diagnosis and management.
- Variation in service delivery models may lead to health inequities for children with CVI.
- Stakeholder consultation will guide the scoping review process to ensure relevance and applicability.

## Abstract

Cerebral visual impairment (CVI) is an umbrella term that describes a broad range of brain related visual problems and it is now the most common cause of visual impairment (VI) in children in the developed world. Early assessment, management and support are essential to minimise the risk of lifelong negative consequences. Currently there are no internationally agreed clinical guidelines for the investigation and diagnosis of CVI, with variation in existing models of care resulting in potential service health inequities for this population.

The objective of this scoping review is to identify and describe the components of existing service delivery models of care in relation to the detection, care, and management of children with CVI.

We will search multiple databases to include MEDLINE, CINAHL, Embase, APA PsycINFO, and The Cochrane Library for English language publications from OECD countries. Supplementary searches will also be conducted to locate grey literature. We will include any study that describes or assesses service delivery for children (0–17 years) with CVI in health and social care, and education settings.

We consulted with a broad range of stakeholders including subject experts and patient and public representatives during the planning and will continue during the conduct, reporting and dissemination of this scoping review.

## Linked entities

- **Diseases:** Cerebral visual impairment (MONDO:0001385)

## Full-text entities

- **Diseases:** CVI (MESH:D014786)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

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## References

27 references — full list in the complete paper: https://tomesphere.com/paper/PMC12904129/full.md

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Source: https://tomesphere.com/paper/PMC12904129