# Legal and Ethical Issues in Periviable Decision-Making in the Current Moment

**Authors:** Elizabeth Tobin-Tyler, Brownsyne Tucker Edmonds, Erika Rose Cheng

PMC · DOI: 10.1017/jme.2025.10186 · The Journal of Law, Medicine & Ethics · 2025-01-01

## TL;DR

This paper discusses the ethical and legal challenges of making medical decisions for infants born between 20 and 25 weeks of gestation, emphasizing the need for inclusive and patient-centered legal frameworks.

## Contribution

The paper highlights the need for legislative changes to support inclusive definitions of parenthood and evidence-based decision-making in periviable births.

## Key findings

- Current laws prioritize life preservation without considering potential harm or diverse family structures.
- Post-Dobbs abortion bans have increased challenges for parental and clinician autonomy in periviable decision-making.
- Legal frameworks must evolve to respect patient autonomy and medical expertise in this complex context.

## Abstract

Periviable births, occurring between 20 and 25 weeks of gestation, present significant challenges due to varying survival rates and potential morbidities for survivors. Medical decision-making in this context raises ethical and legal questions, including considerations of sanctity of life versus quality of life and challenges in the clinician-parent relationship. This article outlines the complex ethical and legal landscape surrounding parental medical decision-making for periviable infants in the United States, discussing the evolution of federal and state laws. Existing laws highlight a vitalist approach that prioritizes life preservation despite potential harm and overlook non-heteronormative and non-traditional family structures, complicating decision-making. The impact of post-Dobbs state abortion bans on parental and clinician autonomy have exacerbated these challenges. We advocate for legislative support for inclusive definitions of legal parenthood to facilitate evidence-based decision-making centered on patients and families. Also needed are legal frameworks that accommodate the intricacies of periviable birth decisions while respecting patient autonomy and medical expertise, especially amidst the evolving legislative environment.

## Full-text entities

- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

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## References

55 references — full list in the complete paper: https://tomesphere.com/paper/PMC12877736/full.md

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Source: https://tomesphere.com/paper/PMC12877736