Experiences of colorectal cancer patients in Australia: a qualitative study on specialised nursing and supportive care

TL;DR

This study explores how colorectal cancer patients in Australia experience healthcare challenges and benefit from specialized nursing and support.

Contribution

The study provides new qualitative insights into the role of specialized cancer nurses and support systems in improving patient experiences.

Findings

Patients faced challenges like delays, miscommunication, and fragmented care in the healthcare system.

Specialized cancer nurses and support networks provided crucial emotional and practical support.

Mindfulness, physical activity, and dietary changes were used by patients to cope with treatment.

Abstract

Colorectal cancer (CC) is the third most common cancer globally. Despite advances in treatment, patients often experience long-term psychological, physical, and social challenges during and after treatment. Specialised cancer care, including the role of cancer nurses, is critical in supporting patients throughout their treatment journey.

This study aimed to explore the experiences of CC patients in Australia in navigating the healthcare system, coping with their diagnosis, and receiving support from specialised cancer nurses and support networks.

An exploratory qualitative design was used. Semi-structured interviews were conducted with nine CC patients (seven females, two males), aged 34–72 years. Interviews were analysed using reflexive thematic analysis.

Four overarching themes emerged. First, challenges navigating the healthcare system, identified participants’ frustrations with delays, miscommunication, and fragmented care. Second, emotional impact of a CC diagnosis and treatment, captured the shock, fear, and isolation experienced, particularly following sudden diagnoses. Third, value of specialised cancer nurses and support networks, highlighted the emotional reassurance and practical guidance provided by community-based nurses and support services. Fourth, physical and mental coping strategies included participants’ use of mindfulness, physical activity, and dietary changes to regain a sense of control.

Specialised cancer nurses played a crucial role in enhancing patient care by addressing both medical and emotional needs. Improving communication, ensuring continuity of care, and providing personalised support are key recommendations for improving the healthcare experience of CC patients in Australia.

The online version contains supplementary material available at 10.1007/s00520-026-10333-6.