Chronic Pain Management for Caregivers of Persons Living with Dementia

TL;DR

This study explores how caregivers of people with dementia can be trained to use auricular point acupressure to manage chronic pain safely and effectively.

Contribution

The study introduces a user-centered blueprint for a caregiver-delivered auricular point acupressure training program tailored to dementia care.

Findings

Caregivers showed strong interest in learning auricular point acupressure as a non-pharmacologic pain management tool.

Caregivers preferred a hybrid training model combining videos, printed materials, in-person workshops, and an AI chatbot.

Training should focus on managing common pain areas like low back, shoulder, and leg pain.

Abstract

Chronic pain is highly prevalent yet undertreated in persons living with dementia (PLWD), affecting up to 80% of PLWD and creating significant challenges for their family caregivers. The serious risks associated with pharmacological treatments like opioids necessitate safer, non-pharmacologic options. Auricular Point Acupressure (APA), a non-invasive and low-cost therapy, constitutes a promising alternative to mitigating pain in this expanding patient population. This study explored caregiver perspectives on using APA to inform the development of a caregiver-delivered training program. We conducted a qualitative descriptive study, guided by Bandura’s self-efficacy theory, with 22 primary family caregivers who provided care for PLWD between February and July 2025. Following IRB approval, semi-structured interviews were used to understand caregiver needs, interests, and preferred learning formats. Thematic analysis was performed using Atlas.ti V9. Caregivers expressed significant interest in learning APA, viewing it as a potentially valuable tool. They expressed a preference for a multi-faceted training program. Participants further requested a hybrid model that combines instructional videos for clear demonstrations with printed materials for quick reference. In addition, they identified a need for an introductory in-person workshop to become familiar with APA and an AI chatbot that would provide immediate answers to pressing questions. Participants felt that the training materials should focus on managing common conditions like low back, shoulder, and leg pain. These user-centered findings provide a foundational blueprint for developing a tailored APA training program that is designed to enhance family caregiver self-efficacy and provide a practical, safe strategy for pain management among PLWD.