Dementia Advocacy in Action: Examining Social Media During World Alzheimer’s Month

TL;DR

This study explores dementia advocacy strategies on social media during World Alzheimer’s Month to reduce stigma and improve awareness.

Contribution

The study identifies four novel dementia advocacy strategies used on social media to increase awareness and reduce stigma.

Findings

Four main advocacy strategies were identified: myth-busting, political advocacy, culturally tailored messages, and amplifying personal narratives.

The study highlights the importance of social media in shaping dementia awareness and advocacy efforts.

Further research is needed to evaluate the effectiveness of these strategies in reducing dementia-related stigma.

Abstract

Dementia awareness campaigns play a vital role in reducing stigma and improving the quality of life of people with dementia. However, there is a paucity of research on advocacy strategies to support dementia awareness, especially on social media. This presentation aims to: i) identify dementia advocacy strategies used to increase awareness on social media during World Alzheimer’s Month; and ii) understand the role of social media in dementia awareness campaigns. Using data from the social media platform X, posts were scraped from September 1 to September 30, 2022. Filters were used to screen for duplicate posts, non-English content, and reply posts with missing content. The remaining 1,981 relevant posts were examined using thematic analysis to identify prominent dementia advocacy strategies. During our data analysis, steps were taken to support rigor such as using a standardized codebook, practice exercises, intercoder reliability checks, and team discussions to oversee coding disagreements. Based on our analysis, we identified four main advocacy strategies: i) myth-busting to address false information; ii) political advocacy to support dementia care reform; iii) tailoring messages to ethnic and cultural groups; and iv) amplifying personal narratives and lived experience of dementia. Although a range of strategies were identified, further research is needed to evaluate the effectiveness of awareness campaigns in addressing dementia-related stigma. The findings from our study have implications for community leaders, health professionals, and policymakers who are working to increase dementia awareness. Our findings provide vital insight to enhance national-level dementia advocacy and awareness campaigns on social media.