Collaborative Design and Development of a Patient-Centered Digital Health App for Supportive Cancer Care: Participatory Study

TL;DR

A new digital health app called OncoSupport+ was co-designed with cancer patients and healthcare professionals to improve communication and supportive care.

Contribution

The paper introduces OncoSupport+, a patient-centered digital health app co-designed through participatory methods with stakeholders.

Findings

OncoSupport+ includes a patient dashboard for tracking outcomes and a nurse dashboard for visualizing patient data.

Ease of use and workflow integration were identified as key facilitators for app adoption.

Internet anxiety was noted as a potential barrier to app acceptance.

Abstract

Digital health tools such as smartphone apps have the potential to improve supportive cancer care. Although numerous smartphone apps for supportive care are available, few are designed using a user-centered approach. Such an approach is crucial for successful implementation, as it may improve user engagement, usability, and adoption in clinical settings.

This study aimed to co-design and develop a digital health app for supportive cancer care in collaboration with patients with cancer and health care professionals and to explore factors influencing its future acceptance.

We conducted a participatory study with the major stakeholders at the University Hospital Zurich. Workshops, individual qualitative interviews, and focus groups were held with health care professionals, survivors of cancer, and patients with cancer. The co-design process was divided into 3 phases: predesign, generative phase, and prototyping. User-centered design methods included scoring cards and think-aloud protocols to co-create design ideas, identify important functionalities, and test usability. Qualitative data were analyzed using thematic analysis.

Patients and health care professionals emphasized the need for a digital health app to improve patient–healthcare professional communication, digitalize supportive care screening and processes, and enhance self-efficacy. The resulting app, OncoSupport+, was co-designed and integrated into the clinical workflow for supportive cancer care. It consists of (1) a patient dashboard to record patient-reported outcome measures and to provide access to personalized supportive care information and contact details, and (2) a nurse dashboard to visualize patient data, which can be used during nursing consultations. Potential facilitators for adoption included ease of use, workflow integration, introduction by health care professionals, and technical support, whereas internet anxiety may be a potential barrier.

Collaborative development with patients and health care professionals is crucial for creating digital health tools that can be implemented successfully. Future research should evaluate the feasibility of long-term implementation and the real-world usability and effectiveness of OncoSupport+ for improving communication, self-efficacy, and quality of life.

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