Decreasing the Epilepsy Treatment Gap in Tena, Ecuador: A Report From 2021 to 2023

TL;DR

This report shows how a partnership in Tena, Ecuador, improved epilepsy care from 2021 to 2023 by providing training, equipment, and treatment.

Contribution

The study presents a model for improving neurological care in resource-limited areas through sustained international collaboration.

Findings

Epilepsy was the most common diagnosis, with 265 cases treated over three years.

Children under 10 years old were the largest patient group.

Local diagnostic capabilities improved with donated EEG equipment and provider training.

Abstract

Background

Neurological care in rural areas such as Tena, Ecuador, remains critically low due to geographic, economic, and systemic barriers. Tena, located in the Amazon region, has limited access to specialized neurological services, creating significant health disparities. Since 2009, the International Neurology Foundation (INF) has partnered with the Hospital José María Velasco Ibarra to address these challenges.

Methodology

This retrospective analysis summarizes data from the INF medical service relief trip (MSRT) conducted in Tena from 2021 to 2023. Clinical records, interviews with providers, and MSRT reports were reviewed to assess patient demographics, diagnoses, treatments, and interventions. Descriptive statistics and thematic analysis were used to identify trends and insights.

Results

Over three years, 751 patients were treated, with epilepsy being the most common diagnosis (265 cases). Children under the age of 10 years represented the largest patient group. Key achievements included the donation of electroencephalography equipment, enabling local epilepsy diagnostics, and training local healthcare providers. Persistent challenges included limited imaging resources, inconsistent medication supply, and barriers related to language and transportation.

Conclusions

INF’s initiatives have significantly improved access to neurological care in Tena, enhancing diagnostic capabilities and providing critical training. Sustainable progress requires investment in infrastructure, expanded training programs, and consistent medication availability. The Tena experience serves as a model for reducing health disparities and improving neurological care in resource-limited settings, aligning with global health equity priorities.