Evaluating Cardiovascular Patient Support Groups: A Cross-Sectional Control-Group Questionnaire Study of Patients and Healthcare Providers

TL;DR

Cardiovascular patient support groups in Austria are found to provide social support and improve patients' quality of life, though they do not significantly improve health knowledge or data.

Contribution

This study evaluates the impact of cardiovascular patient support groups on health literacy and psychosocial well-being in Austria.

Findings

PSG members rated their health literacy higher than non-members, but objective knowledge did not differ significantly.

Participants felt empowered and reported improved quality of life through support group involvement.

Healthcare providers viewed the program positively, despite limited prior engagement with it.

Abstract

Background/Objectives: Participation in patient support groups (PSGs) for long-term cardiac rehabilitation (CR) enables sustainable, cardioprotective lifestyle modification, which can reduce morbidity and cardiovascular mortality. This study evaluates a nationwide network of cardiovascular PSGs in Austria in the holistic management of patients with cardiovascular disease (CVD). Methods: Between December 2023 and March 2024, we evaluated PSGs by surveying members about their knowledge of CVD and self-assessed health status, comparing them with non-member CVD patients. Members’ and healthcare providers’ perceptions of the program were also assessed. Results: PSG members rated their own health literacy regarding CVD higher than non-members (median score: 7.00 vs. 6.00, range 1–10; U = 7088.00, p = 0.014). These results were not confirmed by an objective assessment of participant knowledge, and members did not exhibit better health data. However, members appreciated the association’s services in providing an important social network, enabling them to feel empowered in managing their condition (52.2%), and stated that it “improved their quality of life” (69.6%), while rating detrimental effects of participation as low. Healthcare providers also viewed the program rather positively, though only 5% reported prior contact with it. Conclusions: Cardiovascular PSGs offering long-term CR provide valuable support and are appreciated as important social networks. While further research is needed to confirm improvements in health literacy or health status, participation addresses patients’ psychosocial needs and may particularly benefit those at risk of social isolation and depression, therefore offering a useful addition to comprehensive CVD care.

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