# Exploring the Lived Experiences of Adults With Sickle Cell Disease in Nigeria Using van Manen's Phenomenological Approach

## TL;DR

This study explores the challenges and coping strategies of adults with sickle cell disease in Nigeria, highlighting the need for better healthcare and support systems.

## Contribution

The study provides novel insights into the lived experiences of sickle cell disease patients in Nigeria using van Manen's phenomenological approach.

## Key findings

- Adults with sickle cell disease in Nigeria face recurrent pain, emotional distress, stigmatization, and financial burdens.
- Participants often rely on alternative treatments due to limited access to specialized healthcare and lack of social support.

## Abstract

This study explores the lived experiences of adults with sickle cell disease (SCD) in Ilorin, Kwara State, Nigeria, providing insights into their struggles and coping mechanisms.

A qualitative phenomenological study was conducted to gain a deeper understanding of the lived experiences of adults with SCD.

This study employed a phenomenological approach to explore the lived experiences of adults with SCD. Semi‐structured interviews were conducted with 24 participants, selected through purposive sampling. Data were analyzed thematically using van Manen's phenomenological approach to capture the depth of participants’ experiences.

Findings revealed that adults with SCD endure recurrent pain crises, emotional distress, stigmatization, and substantial financial burdens. Participants reported difficulties in accessing specialized healthcare, leading to increased reliance on alternative treatment methods. Social support was often inadequate, with many experiencing isolation and discrimination. Coping strategies identified included spiritual reliance, engagement in peer support networks, and self‐management practices.

The study underscores the urgent need for comprehensive healthcare interventions, improved psychosocial support systems, and public health policies tailored to the unique challenges faced by adults with SCD. Addressing these issues through multidisciplinary approaches can enhance the quality of life for individuals living with SCD in Nigeria and similar settings.

The findings highlight critical areas for healthcare improvement, including the need for accessible specialized care, financial support mechanisms, and community‐driven psychosocial interventions. Integrating culturally relevant coping strategies, such as spiritual support and peer networks, into healthcare services may improve patient outcomes and overall well‐being.

This study explores the lived experiences of Nigerian adults with sickle cell disease using van Manen's phenomenological approach. Findings reveal profound physical, temporal, spatial, and relational burdens, highlighting the urgent need for integrated care, psychosocial support, stigma reduction, and culturally grounded interventions in low‐resource settings.