# Amplifying voices: The transformative power of voice and voice economy

**Authors:** Erna van der Westhuizen, Surona Visagie

PMC · DOI: 10.4102/ajod.v14i0.1742 · African Journal of Disability · 2025-10-31

## TL;DR

This paper explores how digital tools like The Parent Network and Let's Talk Parent Tool empower parents of children with disabilities to participate in decision-making and advocate for systemic change.

## Contribution

The study introduces a replicable model for digital voice empowerment that supports participatory policy development and builds a 'voice economy'.

## Key findings

- The Parent Network reduces isolation and builds parent-led networks across South African provinces.
- The Let's Talk Parent Tool supports policy monitoring by documenting accessibility barriers with offline and multilingual features.
- These tools promote emotional safety, digital inclusion, and local leadership to address systemic inequities.

## Abstract

Parents of children with disabilities often experience marginalisation and exclusion from decision-making processes. The concept of ‘voice’ as identity and agency is central to addressing these injustices. The Parent Network (PN) and Let’s Talk Parent Tool (LTP) were created to amplify these voices and promote inclusive participation.

This study explores the conceptual foundations and practical implementation of the PN and LTP. It investigates how these tools empower parents, particularly mothers, to engage in policy dialogue and advocate systemic change.

Using a qualitative descriptive approach, data were gathered in July–August 2023 from two purposively selected key informants and supporting grey literature. A WhatsApp-based focus group enabled rich, reflective responses. Data were thematically analysed using ATLAS.ti, with iterative coding to identify themes.

Themes revealed the PN’s role in reducing isolation, enhancing self-representation and building parent-led networks across all South African provinces. The LTP tool supports policy monitoring by allowing users to document accessibility barriers. Offline functionality and multilingual support increase accessibility for digitally marginalised families.

The PN and LTP create transformative spaces where parents reclaim their voices and influence decisions that affect their lives. These tools address systemic inequities by promoting emotional safety, digital inclusion and local leadership.

This study contributes a replicable model for digital voice empowerment. It highlights how community-driven platforms can support participatory policy development and build a ‘voice economy’ that values lived experience as a catalyst for social transformation.

## Full-text entities

- **Genes:** USB1 (U6 snRNA biogenesis phosphodiesterase 1) [NCBI Gene 79650] {aka C16orf57, HVSL1, Mpn1, PN, hMpn1, hUsb1}, TNFRSF8 (TNF receptor superfamily member 8) [NCBI Gene 943] {aka CD30, D1S166E, Ki-1}
- **Diseases:** CWD (MESH:D015362), muscular pain (MESH:D010146), headaches (MESH:D006261), Disabilities (MESH:D009069), seizures (MESH:D012640), PN (MESH:D063129), fatigue (MESH:D005221), PWD (MESH:C000719191), sleep deprivation (MESH:D012892)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

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## Figures

6 figures with captions in the complete paper: https://tomesphere.com/paper/PMC12587122/full.md

## References

73 references — full list in the complete paper: https://tomesphere.com/paper/PMC12587122/full.md

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Source: https://tomesphere.com/paper/PMC12587122