# A Quality Assessment and Evaluation of Credible Online Dietary Resources for Patients with an Ileoanal Pouch

**Authors:** Dakota R. Rhys-Jones, Itai Ghersin, Orestis Argyriou, Sue Blackwell, Jasmine Lester, Peter R. Gibson, Emma P. Halmos, Zaid Ardalan, Janindra Warusavitarne, Kapil Sahnan, Jonathan P. Segal, Ailsa Hart, Chu K. Yao

PMC · DOI: 10.3390/jcm14155348 · Journal of Clinical Medicine · 2025-07-29

## TL;DR

This study evaluates the quality and readability of online dietary resources for patients with an ileoanal pouch, finding them to be generally poor and difficult to understand.

## Contribution

The study introduces a systematic evaluation of online dietary resources for ileoanal pouch patients using DISCERN and Flesch–Kincaid tools.

## Key findings

- Websites had a mean DISCERN score of 33/75, indicating poor quality.
- Readability scores averaged 57/100, labeled as 'fairly difficult'.
- Content themes included dietary advice, symptom management, and nutritional optimization.

## Abstract

Background/Objectives: Patients with an ileoanal pouch change their diet to manage their symptoms and will often resort to the internet for nutrition advice. Currently, no evidence-based dietary guidelines exist to inform online resources. Hence, this study aims to assess the quality of online nutrition information directed towards patients with an ileoanal pouch. Methods: A systematic Google search was conducted to identify consumer websites including information on nutrition for those with ileoanal pouches. Quality was assessed using the DISCERN instrument, and the readability of written content was assessed using the Flesch–Kincaid score. A summative content analysis was used to identify the frequency of particular topics. Websites were also assessed against standards from the National Institute for Health and Care Excellence (NICE) framework for shared decision-making support tools. Results: A total of 12 websites met the inclusion criteria. Mean total DISCERN scores across all websites are 33 out of 75, indicating that overall, the websites were of poor quality. The mean Flesch–Kincaid score was 57 out of 100, or “fairly difficult” in terms of readability. The main themes according to the content analysis were “general dietary advice for pouch”, “dietary strategies for symptom management”, “addressing risks associated with having a pouch”, and “optimisation of nutritional intake”. Overall, websites did not meet the standards for shared decision-making. Conclusions: Online nutrition information for patients with an ileoanal pouch is of poor quality and difficult to understand. There is a need for higher quality online resources for these patients, ideally co-produced with a multidisciplinary team and patient, to provide patients with good quality, understandable, and accessible nutrition information.

## Full-text entities

- **Diseases:** Ileoanal Pouch (MESH:D004062)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

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## Figures

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## References

36 references — full list in the complete paper: https://tomesphere.com/paper/PMC12347495/full.md

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Source: https://tomesphere.com/paper/PMC12347495