# Emergency Department Care Coordination Program for Assisted Living Residents With Dementia: A Qualitative Study

**Authors:** Grace F. Wittenberg, Peter T. Serina, Nichole E. Stetten, Ann Reddy, Ellen McCreedy

PMC · DOI: 10.1001/jamanetworkopen.2025.26413 · JAMA Network Open · 2025-08-11

## TL;DR

This study explores how care managers improve communication between assisted living and emergency departments, especially for dementia patients.

## Contribution

The study provides new insights into the role of complex care managers in enhancing ED care coordination for vulnerable populations.

## Key findings

- CCMs perceived improved advocacy and goal-concordant care for patients with dementia.
- Program weaknesses included lack of ED staff education and 24-hour CCM coverage.
- The program was seen as beneficial for hospice patients and those in group homes.

## Abstract

Is a care coordination intervention led by complex care managers (CCMs) employed by an independent physician group associated with improved communication between the primary care team and emergency department (ED) staff for ED patients who reside in assisted living communities?

In this qualitative study, semistructured interviews with 12 CCMs were conducted, and 5 overarching themes were identified. CCMs described their perceptions that the intervention improved advocacy for patients, especially those with dementia, and enhanced goal-concordant care, while also recognizing program opportunity areas, including improving ED staff education.

Interviews with the CCMs participating in this qualitative study indicated their positive impressions of the program, including perceived enhancement in care for patients.

Care transitions to the emergency department (ED) from assisted living centers (ALCs) for residents may include incomplete or inaccurate information during transfer. These transitions can be especially difficult for vulnerable populations, including persons living with dementia (PLWD).

To assess perceptions of complex care managers (CCMs) implementing a care coordination program designed to improve communication for transfers from ALCs to the ED.

This qualitative study analyzed semistructured video conference interviews with CCMs in February 2024. The ED early response program was available through a physician services group (Bluestone Physician Services), which provides care to residents in ALCs in Florida, Minnesota, and Wisconsin for patients in its accountable care organization. The physician services group identified the CCMs based on scheduling convenience. Data were analyzed in March and April 2024 using directed content analysis.

The ED early response program included electronic notification to the physician services group CCMs when a patient registered at an ED. CCMs then communicated via fax and telephone with the ED staff to provide key clinical information.

CCM-perceived strengths and weaknesses of the program.

Of 22 total CCMs, 12 participated in this study (employed as a CCM for a median [IQR] of 2 [1-3] years; 12 [100%] female) and identified populations that they perceived to especially benefit from the program, including PLWD, patients in hospice, and patients living in group homes. CCMs shared how they communicated with various ED staff, including nurses and physicians, and that receptivity varied among staff. Strengths of the program include CCM advocacy for patients and program adaptability. CCMs described areas of opportunity as lack of education about the program among ED staff and lack of 24-hour coverage for CCMs. Overall, the perception shared by the CCMs was that the program positively affected both the ED experience for patients and the facilitation of goal-concordant care.

In this qualitative study of a care coordination intervention, CCMs advocated for their patients remotely by filling information gaps, particularly for PLWD and patients in hospice, and perceived that the intervention was associated with improved patient care. CCMs also identified key areas for improvement, such as to increase ED staff awareness of the program and to expand program hours. This care coordination intervention may provide an opportunity to address gaps in care for individuals living in ALCs who present to the ED.

This qualitative study assesses whether complex care managers leading a care coordination intervention perceive that it is associated with improved communication between the primary care team and emergency department staff for emergency department patients who reside in assisted living communities.

## Linked entities

- **Diseases:** dementia (MONDO:0001627)

## Full-text entities

- **Diseases:** Dementia (MESH:D003704)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

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## References

28 references — full list in the complete paper: https://tomesphere.com/paper/PMC12340648/full.md

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Source: https://tomesphere.com/paper/PMC12340648