# Transitional Care for Patients with Amyotrophic Lateral Sclerosis to the Home: A Scoping Review

**Authors:** Evelyn Silva de Sousa, Larissa Arielly Cunha da Silva, Renilly de Melo Paiva, Katiane Domingos Soares, Isabelle Campos de Azevedo, Viviane Euzébia Pereira Santos, Evelyn Silva de Sousa, Larissa Arielly Cunha da Silva, Renilly de Melo Paiva, Katiane Domingos Soares, Isabelle Campos de Azevedo, Viviane Euzébia Pereira Santos

PMC · DOI: 10.1590/0034-7167-2024-0297 · Revista Brasileira de Enfermagem · 2025-08-08

## TL;DR

This scoping review maps the care needed to transition patients with Amyotrophic Lateral Sclerosis to home environments, focusing on support and coordination.

## Contribution

The study identifies key care components for transitioning ALS patients to home settings, emphasizing coordination and basic needs.

## Key findings

- Care includes assistance with basic life needs and care planning.
- Telehealth and communication between healthcare services are essential.
- Seven studies were analyzed to determine the scope of transitional care.

## Abstract

to map the care required for the transition of patients with Amyotrophic Lateral Sclerosis to the home environment.

a scoping review was conducted following the JBI guidelines. The search for publications on the topic was carried out in databases such as PubMed and Web of Science between February and May 2023. Full-text studies that addressed the research objective were included. Letters to the editor, editorials, and opinion articles were excluded.

the final sample consisted of seven articles. Regarding care, the studies highlighted assistance with basic life needs, care planning, protocol development, the use of telehealth, and communication between healthcare services.

the care required for the transition of individuals with Amyotrophic Lateral Sclerosis to the home environment ranges from assistance with basic human needs to the coordination with other healthcare services. Altogether, these actions contribute to a safe and effective transitional process.

mapear os cuidados para transição do paciente com Esclerose Lateral Amiotrófica para o domicílio.

revisão de escopo conforme as diretrizes JBI, as buscas de publicações sobre o tema ocorreram em bases como PubMed e Web of Science, entre fevereiro e maio de 2023. Foram incluídos estudos completos que respondiam ao objetivo da pesquisa. Cartas ao editor, editoriais e artigos de opinião foram excluídos.

a amostra final contou com sete artigos. Acerca dos cuidados, os estudos abordaram a assistência às necessidades básicas de vida, o planejamento, a criação de protocolos, o uso da telessaúde e a comunicação entre os serviços.

os cuidados para transição do indivíduo com Esclerose Lateral Amiotrófica para o domicílio vão desde a assistência às necessidades humanas básicas até a articulação com outros serviços de saúde. Tudo isso, direciona para um processo transicional seguro e efetivo.

## Linked entities

- **Diseases:** Amyotrophic Lateral Sclerosis (MONDO:0004976)

## Full-text entities

- **Diseases:** Amyotrophic Lateral Sclerosis (MESH:D000690)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

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## Figures

2 figures with captions in the complete paper: https://tomesphere.com/paper/PMC12334203/full.md

## References

31 references — full list in the complete paper: https://tomesphere.com/paper/PMC12334203/full.md

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Source: https://tomesphere.com/paper/PMC12334203