# Unseen and Invisible? Issues of Recognition for Parents With Intellectual Disabilities Accessing Social Work and Social Care Services for Adults in England

**Authors:** Beth Tarleton, Gillian MacIntyre, Danielle Turney, Rhian Fawcett

PMC · DOI: 10.1111/jar.70075 · Journal of Applied Research in Intellectual Disabilities · 2025-08-03

## TL;DR

The paper explores how parents in England with intellectual disabilities face challenges in accessing social care support, particularly when their condition is mild or not clearly recognized.

## Contribution

The study reveals how mild intellectual disabilities can lead to invisibility in social work services due to eligibility criteria and resource limitations.

## Key findings

- Parents with diagnosed intellectual disabilities receive 'gold standard' support from specialized teams.
- Mild intellectual disabilities often go unrecognized, leading to limited access to services.
- Social worker knowledge and resource constraints influence the inclusivity of support provided.

## Abstract

Parents in England with an intellectual disability may be eligible for support with parenting from Local Authority's Adult services under the Care Act (2014).

This study investigated how adult social workers support these parents through 18 interviews with managers and commissioners and focus groups with 52 social workers, analysed using thematic analysis.

Parents with a diagnosed ‘intellectual disability’ accessed ‘gold standard of support’ from intellectual disability teams. Parents with a milder or borderline intellectual disability accessed support from the ‘general’ team if they had two eligible needs under the Care Act. There were inclusive and more restrictive approaches, related to a lack of resources and social worker knowledge and skills, to the recognition of two eligible needs.

Parents with milder intellectual disabilities are rendered invisible to services due to not having a ‘label’ or ‘obvious’ eligibility for support under the Care Act.

## Full-text entities

- **Diseases:** Disabilities (MESH:D009069), mental or physical disability (MESH:D001523), physical disabilities (MESH:D059445), ID (MESH:C537985), learning difficulties (MESH:D007859), Intellectual Disabilities (MESH:D008607), intellectual difficulties (MESH:D051346), Anxiety (MESH:D001007)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

_Full body text omitted from this summary view._ Fetch the complete paper as Markdown: https://tomesphere.com/paper/PMC12318902/full.md

## References

35 references — full list in the complete paper: https://tomesphere.com/paper/PMC12318902/full.md

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Source: https://tomesphere.com/paper/PMC12318902