# Research priorities for faecal incontinence in adults: A James Lind Alliance priority setting partnership

## TL;DR

This study identifies the top 10 research priorities for faecal incontinence in adults, involving equal input from patients, carers, and healthcare professionals.

## Contribution

The study presents a collaborative, consensus-based list of research priorities for faecal incontinence, guided by patient and professional input.

## Key findings

- 512 respondents submitted 991 evidence uncertainties, leading to 54 summary questions.
- A consensus workshop identified the top 10 priorities covering prevention, treatment, and self-management.
- The priorities reflect shared concerns of both healthcare professionals and individuals with lived experience of FI.

## Abstract

Faecal incontinence (FI) is common, yet clinical guidelines rely on low‐quality evidence or expert opinion. A high proportion of research is focused on areas that may not be considered a priority by patients or clinicians. This project aimed to identify the top 10 research priorities for FI in adults in equal collaboration with patients, carers and healthcare professionals in a James Lind Alliance priority setting partnership (PSP).

This PSP followed established methodology supported by a multidisciplinary steering group including those with lived experience of FI. Evidence uncertainties were gathered through a survey with free‐text responses, summarised in indicative summary questions and prioritised in a second survey. An independently facilitated priority setting workshop used a nominal group technique to reach consensus on the order of research priorities, with a focus on the top 10. At all stages the views of healthcare professionals and individuals with a lived experience of FI were considered equally.

After the initial survey, 512 respondents submitted 991 evidence uncertainties. These produced 54 indicative summary questions. In the second survey, 373 respondents generated a shortlist of 26 questions. Finally, the top 10 research priorities were determined by consensus at a face‐to‐face workshop and include unanswered questions concerning prevention, investigation, education, self‐management and treatment of FI.

This PSP has identified a comprehensive list of top research priorities, including items of importance to both healthcare professionals and individuals with a lived experience of FI. Researchers and funders should use these priorities to inform future work.