# Development of the accredited duchenne centers program, a global program to achieve uniform and up-to-date care for all people living with duchenne muscular dystrophy

## TL;DR

This paper introduces a global program to ensure consistent, up-to-date care for people with Duchenne muscular dystrophy through accredited centers.

## Contribution

The ADC Program is the first global accreditation initiative for Duchenne care covering both children and adults.

## Key findings

- Accredited centers provide care aligned with international guidelines and expert opinions.
- A FAIR database supports transparency and identifies barriers to meeting care criteria.
- The program includes continuous education to maintain accreditation standards.

## Abstract

The Accredited Duchenne Centers (ADC) Program is a global program initiated by the World Duchenne Organization (WDO). The aim of the ADC Program is to achieve global, uniform and up-to-date care for all people living with Duchenne Muscular Dystrophy (DMD) that are in line with the latest international care considerations and care guidelines. This will be realized by accrediting Duchenne care centers for children and/or adults that provide comprehensive care according to the latest care considerations, and supporting care centers that do not yet meet these criteria for accreditation, to improve care provided to DMD patients. The accreditation process consists of five stages ranging from application to maintenance of accreditation by continuous education. The accreditation criteria and procedures were developed in close collaboration with an international Advisory Board. This paper describes the development and content of the ADC Program. The ADC Program is the first global accreditation program for both children and adults with DMD. The results of the program may contribute to optimal implementation of the latest research insights and optimum care for all people living with DMD and their families.

Global accreditation program for Duchenne Muscular Dystrophy: the Accredited Duchenne Centers (ADC) ProgramCare provided according to the care considerations, consensus guidelines and expert opinions Professionals, patients and families are involved in the development of the ADC ProgramContinuous education is part of the programThe ADC Program contributes to global, uniform and up-to-date care for all people living with Duchenne muscular dystrophyA FAIR database stores interview recordings and questionnaire results to provide transparency and identify barriers to meeting specific criteria

Global accreditation program for Duchenne Muscular Dystrophy: the Accredited Duchenne Centers (ADC) Program

Care provided according to the care considerations, consensus guidelines and expert opinions

Professionals, patients and families are involved in the development of the ADC Program

Continuous education is part of the program

The ADC Program contributes to global, uniform and up-to-date care for all people living with Duchenne muscular dystrophy

A FAIR database stores interview recordings and questionnaire results to provide transparency and identify barriers to meeting specific criteria