# An Interpretive Description of Patient and Provider Perspectives on the Impact of the COVID-19 Pandemic on Lung Transplant Care Access and Service Delivery in Alberta, Canada

## TL;DR

This study explores how the COVID-19 pandemic affected lung transplant care in Alberta, Canada, from the perspectives of patients and healthcare providers.

## Contribution

The study provides new insights into the specific challenges faced by lung transplant patients and providers during the pandemic in Alberta.

## Key findings

- The pandemic created a 'relational wall' affecting social relationships and care delivery for lung transplant patients.
- Virtual care was used but had limitations, and mental health support was lacking for this population.
- A backlog of transplant surgeries occurred due to fewer procedures during the pandemic.

## Abstract

Background: The COVID-19 pandemic impacted how health services were delivered for patients with chronic pulmonary conditions. To our knowledge, perceptions of patients with lung transplant (LT) and their providers on access to care and service delivery during the COVID-19 pandemic have not been explored in our context of Alberta, Canada. Our objective was to explore LT patient and provider perspectives on the impact of the COVID-19 pandemic on healthcare access and service delivery.

Methods: We used interpretive description, a qualitative approach with the end-goal of informing decisions and actions in clinical practice. Interviews were conducted virtually and confidentially transcribed verbatim. Data generation and analysis occurred concurrently. Analysis was informed by Braun and Clarke's six phases of reflexive thematic analysis. Strategies to enhance rigor and trustworthiness of the findings were utilized.

Results: We completed 17 interviews: 8 with patients and 9 with providers. Four key themes were generated: (1) “COVID-19 created a relational wall;” (2) “Determining how care should be delivered was a juggling act;” (3) “Balancing supply and demand;” and (4) “The unique costs of being immunocompromised during a global pandemic.” The pandemic impacted social relationships for LT patients, especially through the use of virtual care. Several factors hindered access to care for LT patients. Provider participants highlighted how there were less transplants during the pandemic which created a backlog in transplant surgeries. Fear of COVID-19 meant that some LT patients were hesitant to seek healthcare services, resulting in later-term health consequences. A need for mental health services was identified among this population despite an apparent lack of available services. Participants highlighted the gap in COVID-19 resources that now exists for this population since testing and treatments are no longer as readily available.

Conclusions: In conclusion, provider participants did the best that they could with the circumstances they faced to provide high-quality care to LT patients. However, while patient participants were generally understanding of circumstances, LT care suffered as a result of the COVID-19 pandemic. Care for this population generally needs to be in-person, but there is nuance surrounding this recommendation due to LT patients' immunocompromised nature. Health system leaders can leverage our findings to implement learnings from the pandemic and continue to improve services for the ever-growing LT population.