# Understanding Breast Cancer (BRCA) Mutations Through TikTok

## TL;DR

This study examines how TikTok is used to discuss BRCA mutations, finding that most content is created by non-medical users and focuses on prevention and treatment.

## Contribution

The study provides new insights into BRCA mutation discussions on TikTok, emphasizing the lack of healthcare professional involvement.

## Key findings

- 97.4% of BRCA-related TikTok videos were created by laypersons, with only 2.3% by healthcare workers.
- 68% of treatment-related videos discussed double mastectomy, including 41.3% for prevention without a cancer diagnosis.
- A video about motherhood and BRCA prevention received 2.3 million views, highlighting public interest in this topic.

## Abstract

TikTok is one of the biggest social media platforms where people look for support, seek advice, and educate themselves through videos created by other users. In today's world, people frequently turn to the internet for easy access to health and medical information; it is no surprise that TikTok has helped facilitate the creation of online support groups for those who are overcoming various illnesses and diseases. Breast cancer (BRCA) is worldwide the most common cancer in women, and while BRCA discussions on TikTok have been researched previously, discussions surrounding the BRCA susceptibility gene mutations have not. This study aims to explore content on TikTok related to BRCA mutations and assess its impact on public awareness and physician involvement. One hundred videos were watched on TikTok after searching “BRCA”, BRCA1”, or “BRCA2”. These videos were categorized into groups based on content creator and type of content. The content included discussion regarding preventative measures with BRCA mutations, BRCA and BRCA mutation, ovarian cancer and BRCA mutation, and various treatment options. The videos were also evaluated based on the number of views each video received. This study found that healthcare workers participated in BRCA-related TikTok videos at only 2.3% of all evaluated videos; 97.4% were created by laypersons. Of those videos created by non-medical personnel, 17.3% were educational. The majority (49.3%) were centered around preventative measures and treatments undergone after a BRCA mutation diagnosis. The treatment modality most discussed was double mastectomy at 68%, with 41.3% of those videos being preventative double mastectomies without a current cancer diagnosis. The video with the most views was with regard to motherhood and BRCA prevention at 2.3 million views; 10.4% of the videos discussed difficulties with BRCA in motherhood. Overall, this study highlights the importance of physician involvement in social media platforms. It also showcases how medical providers can use TikTok to better understand patients' needs and discussions outside of the office with regard to their diagnosis.