Strabismic Adults' Expectations of Psychosocial Support From Healthcare Professionals–A Qualitative Descriptive Study

TL;DR

Adults with strabismus describe what psychosocial support from healthcare professionals should include to help improve their quality of life.

Contribution

Identifies specific psychosocial support expectations of strabismic adults, including education, genuine encounters, and accessible peer support.

Findings

Strabismic adults expect education about strabismus from specialists for patients and the public.

Participants emphasized the need for accessible psychological care and timely support from nurses and psychologists.

Peer support guidance from professionals is expected to help manage the psychosocial burden of strabismus.

Abstract

Strabismus, an eye misalignment, impacts the functional and psychosocial health‐related quality of life in adult patients. Corrective surgery generally improves adults' health‐related quality of life. Previous research reports that strabismic adults with a psychosocial influence of the condition may benefit from preoperative psychosocial support, although what such support should consist of is unclear. Therefore, this study aimed to describe strabismic adults' expectations of psychosocial support from healthcare professionals.

The study has a qualitative descriptive design. It included 12 semi‐structured interviews with purposefully recruited patients who had experienced the psychosocial influences of strabismus. The data were analyzed by inductive content analysis.

Strabismic adult patients described their expectations for psychosocial support, consisting of education about strabismus, genuine encounters with strabismus experts, accessible support, and available peer support. The participants explained that strabismus specialists should provide tailored education for patients, the public, and other healthcare professionals. They shared that strabismus professionals should ask about patients' psychosocial well‐being—that by intently listening, openly discussing, and validating patients' experiences, they could support their well‐being. Psychological care provided by nurses and psychologists should be easily accessible, supportive, and timely for children and adolescents. Participants also expected professionals to guide them to available peer support.

Strabismic adult patients dealing with the condition's psychosocial burden expect psychosocial support from strabismus experts. This study's results can be used to improve psychosocial care in clinical strabismus services.

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