‘What does “remaining living at home” really mean?’ Stakeholders’ perspectives on everyday difficulties among older people with chronic conditions

TL;DR

This study explores how stakeholders view the challenges faced by older people with chronic conditions who wish to live at home.

Contribution

The study provides new insights into stakeholders' perspectives on barriers to independent living for older people with chronic conditions.

Findings

Stakeholders identified fear of losing autonomy as a major concern for older people.

Socio-economic inequality and limited housing options were highlighted as barriers.

Participants emphasized the need for greater awareness of older people's needs among stakeholders.

Abstract

Older people with chronic conditions prioritize living arrangements that let them maintain their autonomy. However, many face activity limitations and participation restrictions. Stakeholders involved in their health and social care have a unique perspective on these challenges. The aim of this study was to examine how these stakeholders view the difficulties older people with chronic conditions living at home face in their everyday lives.

We conducted a qualitative descriptive study based on a focus group interview with eight stakeholders involved in health care, social care and housing for older people with chronic conditions. We transcribed the interview verbatim and analysed it using thematic analysis.

We generated four themes: fear of losing autonomy, inequality along socio-economic lines, persisting and new barriers, and ‘what does “remaining living at home” really mean?’. Participants problematized the lack of awareness among key stakeholders for older people’s needs and limited housing options beyond the dichotomous choice between ageing at home and in a care home.

Acknowledging diverse factors – fear of losing autonomy, socio-economic situation, limited awareness of key stakeholders, physical and other barriers, societal discourses – shaping older peoples’ choices regarding their living arrangements informs how occupational therapists can support them.

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