# MyGuide long COVID: An online self-management tool for people with long COVID

## TL;DR

MyGuide Long COVID is an online tool that helps people manage their long COVID symptoms by providing personalized resources based on their needs.

## Contribution

The paper introduces MyGuide Long COVID, a co-developed online self-management tool for long COVID patients, supported by patient and clinician input.

## Key findings

- MyGuide Long COVID had 52,578 page views and 8570 new users in its first year.
- The most popular topics were 'Post Exertional Malaise' and 'What is long COVID?'
- The tool was accessed mostly via computer, with Vancouver being the most represented city.

## Abstract

Long COVID is a relatively new condition for which patients are asked to employ self-management strategies to manage their symptoms. However, it can be challenging for individuals with long COVID to find reliable and actionable self-management resources. The objective of this project was to develop an online tool for individuals with long COVID that is patient-centered, accessible, and customizable to meet individual needs.

MyGuide Long COVID (www.longCOVIDguide.ca) was developed in British Columbia (BC), Canada, by a team that included long COVID clinicians and patient partners. Site visitors answer questions about their symptoms, and MyGuide generates a curated set of self-management resources tailored to their needs. Since its launch in August 2023, Google Analytics has been used to monitor website activity.

Within the first year, MyGuide had 52,578 total page views and 8570 new users. The most popular method to access MyGuide was by computer (56.3 % of users), and the most represented city was Vancouver, BC (23.5 % of users). The most popular topics were “Post Exertional Malaise” (1339 sessions) and “What is long COVID?” (1257 sessions).

An online tool to support chronic disease self-management can be successfully co-developed with patient partners and engagement tracked using web analytics.

•It can be challenging for people with long COVID to find actionable self-management resources.•Developed with input from clinicians and patients, MyGuide Long COVID curates a set of resources for site visitors.•Within the first year, MyGuide Long COVID had 52,578 page views and 8570 new users.•MyGuide Long COVID is an example of an online tool can be co-created with patient partners and engagement tracked using web analytics.

It can be challenging for people with long COVID to find actionable self-management resources.

Developed with input from clinicians and patients, MyGuide Long COVID curates a set of resources for site visitors.

Within the first year, MyGuide Long COVID had 52,578 page views and 8570 new users.

MyGuide Long COVID is an example of an online tool can be co-created with patient partners and engagement tracked using web analytics.