46 Understanding the wants and needs of adults with cerebral palsy who use wheelchairs to participate in community-based physical activity – a qualitative study

TL;DR

This study explores how adults with cerebral palsy who use wheelchairs can better participate in community physical activities by understanding their needs and desires.

Contribution

The study provides new insights into the specific needs of wheelchair users with CP for inclusive and individualized physical activity options.

Findings

Adults with CP desire inclusive physical activities tailored to their individual needs.

Support providers play a crucial role in determining the types of activities participants engage in.

Accessible environments and trained staff are essential for successful participation.

Abstract

This study explored the perspectives of adults with CP who use wheelchairs and their support providers regarding physical activity, specifically what they wanted to do and what they needed to participate.

A qualitative study using interpretive description was conducted from a convenience sample of seven adults with CP (5 female, mean age 17.7 years) and five support persons (5 female) who participated in semi-structured interviews. Interviews were conducted using videoconferencing software and were recorded and transcribed. Data were analysed using qualitative data analysis software. Transcripts were checked by the research team. The research team conducted an inductive thematic analysis to identify themes. Consumer partners provided feedback on the project, including interpretation of the themes to ensure relevance to the intended population.

Analysis identified that adults who use wheelchairs strongly desire to engage in physical activity in their community but need inclusive options tailored to their specific needs. Six themes were identified: 1) appreciating diversity among wheelchair users - by recognising individuality, advocating for inclusive activities, and recognising the individual beyond their disability; 2) self-determination and control - emphasising that adults with CP using wheelchairs seek autonomy in their choices and decision-making; 3) flexibility and creativity in adapting activities - participants seek customised, flexible physical activities; 4) accessibility, both physical and social - emphasising the important role of accessible environments, including physical structures and social attitudes, staff training, and knowledge. 5) the crucial role of support providers who hold positions of trust and recognise their recommendations or concerns play an important role in determining the types of activities that adults engage in; and 6) appropriately challenging activities that maximise involvement – ensuring activity and ability are matched carefully, leading to feelings of satisfaction and pride.

Findings highlight the importance of implementing individualised and inclusive approaches to promote physical activity participation among adults with CP who use wheelchairs. To improve participation in physical activity, it is important to not only enhance physical accessibility but also make accommodations that support active involvement by focusing on attitudes, staff training, and listening to the voices of adults with CP.