# Quality of Life of the Primary Caregivers of Children with Cleft Lip and Palate in Guanajuato, Mexico: A Cross-Sectional Study

**Authors:** María del Carmen Villanueva-Vilchis, Karen Esperanza Almanza-Aranda, Luis Alberto Gaitán-Cepeda, Rubén Rangel-Salazar, María de los Ángeles Ramírez-Trujillo, Fátima del Carmen Aguilar-Díaz, Javier de la Fuente-Hernández

PMC · DOI: 10.3390/healthcare12161659 · Healthcare · 2024-08-20

## TL;DR

This study found that caregivers of children with cleft lip and palate in Guanajuato, Mexico, report lower quality of life compared to a control group.

## Contribution

The study provides new insights into the impact of caring for children with cleft lip/palate on caregivers' quality of life in a specific Mexican context.

## Key findings

- 64.8% of caregivers in the study group reported poor quality of life.
- Caregivers of children with cleft lip/palate are more likely to experience poor quality of life.
- The study highlights the need for comprehensive support for both patients and caregivers.

## Abstract

Comprehensive treatment is crucial for patients with a cleft lip/palate. While studies have investigated its impact on children’s quality of life, few have examined the effects on primary caregivers. The aim of the study was to compare the quality of life of caregivers of children with cleft lip/palate to a control group at the National School for Higher Studies, National Autonomous University of Mexico, Guanajuato. A cross-sectional study was conducted at a teaching dental clinic of the National School of Higher Studies, National Autonomous University of Mexico, Guanajuato, México, from May to December 2021 involving 140 caregivers (70 in each group). The WHOQoL Bref instrument assessed the quality of life. In addition to the descriptive analysis, a binary logistic regression analysis was carried out, taking dichotomized reported quality of life as the dependent variable. Among the caregivers, 88.6% were female (p > 0.05), and 45 (64.8%) from the study group reported poor quality of life (p < 0.05). A multivariate analysis indicated that caring for a child with cleft lip/palate raised the likelihood of poor quality of life (p < 0.05). The findings emphasize the need for comprehensive support for both patients and caregivers, as their well-being affects patient outcomes.

## Linked entities

- **Diseases:** cleft lip (MONDO:0004747), cleft palate (MONDO:0016064)

## Full-text entities

- **Diseases:** Cleft Lip and Palate (MESH:D002971)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Full text

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## References

27 references — full list in the complete paper: https://tomesphere.com/paper/PMC11353397/full.md

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Source: https://tomesphere.com/paper/PMC11353397