# Designing a core data set for benign hysterectomy registration system and its implementation in a referral teaching hospital in Northwest Iran

## TL;DR

This paper describes the design and implementation of a data set and registry system for benign hysterectomy patients in a hospital in Iran to improve care quality and surgical decision-making.

## Contribution

The paper introduces a standardized dataset and web-based registry system for benign hysterectomy in Iran.

## Key findings

- The dataset includes 11 main groups, 27 subclasses, and 91 data elements.
- A web-based registry system was successfully designed and evaluated using patient data.
- The system captures procedure techniques and complications for quality assessment.

## Abstract

Although minimally invasive hysterectomy offers advantages, abdominal hysterectomy remains the predominant surgical method. Creating a standardized dataset and establishing a hysterectomy registry system present opportunities for early interventions in reducing volume and selecting benign hysterectomy methods. This research aims to develop a dataset for designing benign hysterectomy registration system.

Between April and September 2020, a qualitative study was carried out to create a data set for enrolling patients who were candidate for hysterectomy. At this stage, the research team conducted an information needs assessment, relevant data element identification, registry software development, and field testing; Subsequently, a web-based application was designed. In June 2023the registry software was evaluated using data extracted from medical records of patients admitted at Al-Zahra Hospital in Tabriz, Iran.

During two months, 40 patients with benign hysterectomy were successfully registered. The final dataset for the hysterectomy patient registry comprise 11 main groups, 27 subclasses, and a total of 91 Data elements. Mandatory data and essential reports were defined. Furthermore, a web-based registry system designed and evaluated based on data set and various scenarios.

Creating a hysterectomy registration system is the initial stride toward identifying and registering hysterectomy candidate patients. this system capture information about the procedure techniques, and associated complications. In Iran, this registry can serve as a valuable resource for assessing the quality of care delivered and the distribution of clinical measures.