# European Health Information Portal: a one-stop shop for health information

**Authors:** Hanna Tolonen, Miriam Saso, Brigid Unim, Luigi Palmieri, Nienke Schutte, Mariana Peyroteo, Luís Velez Lapão, Claudia Habl, Petronille Bogaert, Claudia Habl, Claudia Habl, Cara Pries, Richard Pentz, Stefan Mathis-Edenhofer, Andrea Schmidt, Alexander Grabenhofer-Eggerth, Johannes Weiss, Sophie Sagerschnig, Anita Gottlob, Lorenz Dolanski, Alexander Degelsegger-Marquez, Beate Gruber, Katharana Habimana, Petronille Bogaert, Marie Delnord, Nienke Schutte, Kim Vyncke, Tadek Krzywania, Linda Abboud, Miriam Saso, Brecht Devleesschauwer, Barthélémy Moreau de Lizoreux, Pascal Derycke, Pierre Daubresse, Sasha Milbeck, Karin De Ridder, Charles-Andrew Van de Catsyne, Sejla Cilovic Lagarija, Anina Chileva, Jelena Dimnjakovic, Jakov Vukovic, Sarka Dankova, Ondrej Májek, Sigrid Vorobjov, Jane Idavain, Merika Rätsep, Hanna Tolonen, Mari Mäkinen, Mika Gissler, Jennifer Zeitlin, Marianne Philibert, Laure Carcaillon-Bentata, Romana Haneef, Tatjana Makovski, Martin Thißen, Stefanie Seeling, Angela Fehr, Thomas Ziese, Christina Georgakopoulou, Elena Petelos, Christog Lionis, Dimitra Lingri, Tóth Kornél, Ágnes Töll, Peter Bezzegh, István Csizmadia, Róbert Láng, Kiss Csaba, Alan Cahill, Michael Courtney, Pauline White, Kelly Ailish, Patricia Clarke, Sharon Kappala, Breda Smyth, Luigi Palmieri, Brigid Unim, Andrea Faragalli, Janis Misins, Irisa Zile, Ausra Zelviene, Audronè Astrauskiené, Guy Weber, Dorita Buttigieg, Neville Calleja, Oleg Lozan, Rodica Gramme, Mariken Tijhuis, Daniela Moye Holz, Henk Hilderink, Linda Berger-Symons, Marit de Vries, Håkon Haaheim, Frode Forland, Zuzana Nordeng, Tricia Larose, Malgorzata Strozyk, Pawel Maryniak, Krystyna Drogon, Karolina WęGrzyn, Tomasz Wisniewski, Kinga Paciorek, Paulo Nogueira, Leonor Bacelar-Nicolau, Rodrigo Feteira Santos, Luís Lapão, Mariana Peyroteo, Marília Silva Paulo, Teresa Montez, Carlos Dias, Veronica Gomez, Lucinda Oliveira das Neves, Andre Peralta-Santos, Petru Sandu, Elena Gabriela Gaftonie, Edit Fekete, Lacramioara Brinduse, Silviu Radulescu, Maja Krstic, Aleksandar Medaveric, Jan Cap, Metka Zaletel, Matej Vinko, Tatjana Kofol Bric, Inmaculada León Gómez, Carmen Rodriguez-Blazquez, M João Forjaz, Marta Marin, Amparo Larrauri, Rebeca Ramis, Asuncion Diaz, Ester Angulo-Pueyo, Cesar Garriga, Teresa Valero, Francisco Estupiñán, Sandra Garcia-Armesto, Enrique Bernal-Delgado, Juan González García, Javier Gómez-Arrue Azpiazu, Ramon Launa Garces, Teresa López-Cuadrado, Ramón Launag, Carlos Telleria, Meriam Seral, Ester Angulo-Pueyo, Lovisa Syden, Ashley Akbari, Ronan Lyons, Sarag Aldridge

PMC · DOI: 10.1093/eurpub/ckad172 · The European Journal of Public Health · 2024-07-01

## TL;DR

The European Health Information Portal provides centralized access to health data and resources to support decision-making and research across EU countries.

## Contribution

The portal introduces a unified platform to improve the findability, access, and reuse of health information across Europe.

## Key findings

- The portal includes sections on data sources, publications, and ethical issues related to health information.
- It supports researchers, policymakers, and stakeholders by aggregating population health information from EU Member States.
- The portal aligns with the European Health Data Space (EHDS) Regulation to ensure sustainability and secondary use of health data.

## Abstract

Timely and high-quality population-level health information is needed to support evidence-informed decision-making, for planning and evaluation of prevention, care and cure activities as well as for research to generate new knowledge. FAIR (Findable, Accessible, Interoperable and Reusable) principles are one of the key elements supporting health research and making it more cost-effective through the reuse of already existing data. Currently, health data are in many countries dispersed and difficult to find and access.

Two EU Public Health Programmes co-funded Joint Actions, Information for Action (InfAct) and Population Health Information Research Infrastructure (PHIRI) have established a European Health Information Portal, a web-based service, to facilitate better findability, access, interoperability and reuse of existing health information.

The European Health Information Portal (www.healthinformationportal.eu) has been established including sections on National Nodes, data sources, publications, health information projects within countries and across Europe, research networks and research infrastructures, ethical and legal issues for health information exchange and use, capacity-building activities in all areas of population health and a dedicated COVID-19 section.

The European Health Information Portal, being a central place for a wide range of population health information from EU Member States, is an information source for researchers, policy-makers and other relevant stakeholders. It is important to ensure the sustainability of the portal, especially in light of the European Health Data Space (EHDS) Regulation proposal and its requirements regarding the secondary use of health data.

## Full-text entities

- **Diseases:** COVID-19 (MESH:D000086382)

## Full text

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## Figures

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## References

29 references — full list in the complete paper: https://tomesphere.com/paper/PMC11215314/full.md

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Source: https://tomesphere.com/paper/PMC11215314