# Evaluating an interactive tool that reasons about quality of life to support life planning by older people

**Authors:** Neil Maiden, Sophie Hide, James Lockerbie, Simone Stumpf, Juanita Hoe, Shashi Hirani

PMC · DOI: 10.1177/20552076241255633 · 2024-06-07

## TL;DR

This paper presents a co-designed digital tool to help older people plan their lives for better quality of life, with early evidence of its potential value.

## Contribution

The paper introduces a co-designed digital tool with a computerized quality of life model for life planning by older people.

## Key findings

- The co-designed tool showed potential value in supporting life planning for older people.
- Older people incorporated the tool's suggestions into their long-term planning despite limited uptake.
- Some users struggled with the tool's design, affecting its effectiveness.

## Abstract

In response to the lack of digital support for older people to plan their lives for quality of life, research was undertaken to co-design and then evaluate a new digital tool that combined interactive guidance for life planning with a computerised model of quality of life.

First, a workshop-based process for co-designing the SCAMPI tool with older people is reported. A first version of this tool was then evaluated over eight consecutive weeks by nine older people living in their own homes. Four of these people were living with Parkinson's disease, one with early-stage dementia, and four without any diagnosed chronic condition. Regular semi-structured interviews were undertaken with each individual older person and, where wanted, their life partner. A more in-depth exit interview was conducted at the end of the period of tool use. Themes arising from analyses of content from these interviews were combined with first-hand data collected from the tool's use to develop a description of how each older person used the tool over the 8 weeks.

The findings provided the first evidence that the co-designed tool, and in particular the computerised model, could offer some value to older people. Although some struggled to use the tool as it was designed, which led to limited uptake of the tool's suggestions, the older people reported factoring these suggestions into their longer-term planning, as health and/or circumstances might change.

The article contributes to the evolving discussion about how to deploy such digital technologies to support quality of life more effectively.

## Linked entities

- **Diseases:** Parkinson's disease (MONDO:0005180), dementia (MONDO:0001627)

## Full-text entities

- **Diseases:** dementia (MESH:D003704), Parkinson's disease (MESH:D010300)
- **Species:** Homo sapiens (human, species) [taxon 9606]

## Figures

14 figures with captions in the complete paper: https://tomesphere.com/paper/PMC11159557/full.md

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Source: https://tomesphere.com/paper/PMC11159557