# Hirschsprung Disease: The Role of the Clinical Nurse Specialist

## TL;DR

This paper discusses how clinical nurse specialists support children and families dealing with Hirschsprung disease from diagnosis to adulthood.

## Contribution

The paper highlights the unique role of clinical nurse specialists in managing Hirschsprung disease across different care stages.

## Key findings

- Clinical nurse specialists provide education and training to patients and families.
- They connect families with social and psychological support services.
- Their involvement helps reduce the impact of Hirschsprung disease on patients and families.

## Abstract

Hirschsprung disease is a life-long condition that can have a significant impact on both children and their families. This article explores the role of the clinical nurse specialist and the support they can provide from initial diagnosis through the patient’s surgical journey and right through to transition into adult services. Through the provision of education, training, signposting of social and psychological support, and linking in with community-based services, the clinical nurse specialist can help the child and family to limit that impact of the disease.