603 A Burn Survivor- & Burn Community Stakeholder-Generated & Prioritized Research Agenda
Callie M Thompson, Crystal D Webb, Giavonni M Lewis, Ann Marie B Prazak, Kristen C Quinn

TL;DR
Burn survivors and their community co-created a research agenda to guide future burn research priorities and address barriers to participation.
Contribution
The first stakeholder-generated and prioritized research agenda co-produced by burn survivors and community members.
Findings
37 research topics and 19 barriers to research participation were identified and ranked by burn survivors and caregivers.
Top barriers include mismatched timing, unclear benefits, and lack of resources for participation.
The collaborative model emphasizes survivor expertise and co-production in all stages of research.
Abstract
Burn survivors are involved in burn research but typically as a research subject. We believe that the outcomes & impact of burn research can be improved by engaging survivors as collaborators in the planning, implementation, & dissemination of burn research. The goal of the work presented here was to produce the first research agenda generated & prioritized by burn survivors & other invested members of our burn community. A research collaborative with a focus of co-production with burn survivors was formed in early 2022. This collaborative is run by governance committees, the majority of whom are burn survivors. Other members of the governance are family members & caregivers of burn survivors, & members of the burn community. The first goal of the collaborative was to form a stakeholder-generated & prioritized agenda for future burn research. The collaborative decided on 4 broad topics…
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Taxonomy
TopicsBurn Injury Management and Outcomes
