# Comment on Ombashi, van der Goes, Versnel, Khonsari, van der Molen: guidance to develop a multidisciplinary, international, pediatric registry: a systematic review, Orphanet Journal of Rare diseases, 2023

## TL;DR

This letter points out that a key Swedish cleft care registry was omitted in a recent systematic review on international pediatric registries.

## Contribution

The authors highlight the exclusion of a relevant multidisciplinary registry that meets the study's criteria.

## Key findings

- The Swedish cleft lip and palate registry is multidisciplinary and has high coverage and reporting.
- The registry has reliable and valid outcome measures and is used for comparing treatment centers.
- Multiple research studies have been published using data from the registry.

## Abstract

Recently, Ombashi et al. published a systematic review aiming to identify the pitfalls in the development and implementation as well as factors influencing long-term success of a multidisciplinary, international registry for cleft care on a global scale. The purpose of this letter to the editor is to highlight that the review failed to include the Swedish quality registry for patients born with cleft lip and palate, which fulfils the inclusion criteria. The Swedish cleft lip and palate registry is multidisciplinary, has a high coverage and reporting degree, and most outcome measures have been checked for reliability and validity. It is regularly used for open comparisons between treatment centers. Several research studies have been published based on the Swedish cleft lip and palate registry, and more are ongoing. The information we provide about the Swedish cleft lip and palate registry complements and expands the information of the results reported by Ombashi et al. in their research.