Silent struggles: Parkinson's disease with multiple system atrophy
Khasnur Abd Malek
Abstract
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Taxonomy
TopicsParkinson's Disease Mechanisms and Treatments · Neurological disorders and treatments
Introduction
This poem delves into the insidious nature of Parkinson's disease with Multiple System Atrophy, portraying it as a silent killer that slowly strips individuals of their freedom from within. It sheds on the significant experience observed in a patient who is affected by this complex neurological condition.
A poem from the perspectives of daughter and a family medicine doctor.
This poem is written by a grieving daughter who is also a family medicine doctor, in memory of her father. This poem honors a resilient man who faced Multiple System Atrophy with grit, perseverance and courage. My special thanks go to his dedicated wife, the main caregiver, whose love and strength were a guiding light. I thank from the bottom of my heart, the support of his two sons and all family members. A big gratitude to the neighbors, relatives, and helpers for easing his journey. A big thank you to the medical team–specialists, nurses, physiotherapists, speech therapists, and ward staff–for their crucial role in his care and his numerous admissions. Your collective compassion created a lasting tapestry of love and support.
Oh Father, As multiple system atrophy (MSA) claims its ruthless call, Casting its shadows at the evening’s fall A daughter weeps, her heart in anguish. Gazing upon a father’s plight
Oh Father, You endure a rare and relentless fight As multiple systems weaken, crumble, and fall, Parkinson’s grip, like a silent veil, Traps your individual, once strong and proud.
Oh Father, Lost in shadows, independence shreds In your own body, a captive embrace. A once strong man, now confined to his bed, Trapped in a wheel-chair, bound by despair.
Oh Father, Each step-down, a silent, mournful toll, Sleep impaired, anxiety takes control. Weight diminishing, muscle wasting away, Muscles stiffening, speech a whispering breeze,
Oh Father, I watched with heavy heart and fading hope, Vibrant characters stolen by the grip of disease’s dismay Your smile concealed, in an expressionless grace, Your loving smile now taken away
Oh Father Independence lost, a vibrant past erased, Society’s contributor, now tightly encased. Even as the body succumbs to fate, Life advice bestowed, a legacy innate.
Oh Father With a heart heavy, yet somehow light, I watch your return to your loving Creator, With grace and serene tranquility No more the chains of illness to bear
Oh Parkinson I speaks to you, MSA, with rage unbound, For the suffering caused, a heartache profound. You are a torment that won’t ease. That stole my father a piece at a time.
Oh Parkinson Oh, ruthless foe, with no compassion in your trait, My tears, a torrent, can’t allay. In my words, a daughter’s plea, For a world without MSA’s tyranny.