The HEAL Data Platform

TL;DR

The HEAL Data Platform is a cloud-based federated system built on Gen3 that enables unified search, discovery, and analysis of diverse NIH HEAL Initiative data across multiple repositories, enhancing data accessibility and reuse.

Contribution

It introduces a scalable, interoperable platform that consolidates HEAL data discovery and analysis, leveraging open-source tools and secure cloud environments.

Findings

Serves over 1,000 studies with hundreds of monthly users

Interoperates with 19 data repositories and commons

Facilitates secondary analysis through integrated cloud compute environments

Abstract

Objective: The objective was to develop a cloud-based, federated system to serve as a single point of search, discovery and analysis for data generated under the NIH Helping to End Addiction Long-term (HEAL) Initiative. Materials and methods: The HEAL Data Platform is built on the open source Gen3 platform, utilizing a small set of framework services and exposed APIs to interoperate with both NIH and non-NIH data repositories. Framework services include those for authentication and authorization, creating persistent identifiers for data objects, and adding and updating metadata. Results: The HEAL Data Platform serves as a single point of discovery of over one thousand studies funded under the HEAL Initiative. With hundreds of users per month, the HEAL Data Platform provides rich metadata and interoperates with data repositories and commons to provide access to shared datasets. Secure, cloud-based compute environments that are integrated with STRIDES facilitate secondary analysis of HEAL data. The HEAL Data Platform currently interoperates with nineteen data repositories. Discussion: Studies funded under the HEAL Initiative generate a wide variety of data types, which are deposited across multiple NIH and third-party data repositories. The mesh architecture of the HEAL Data Platform provides a single point of discovery of these data resources, accelerating and facilitating secondary use. Conclusion: The HEAL Data Platform enables search, discovery, and analysis of data that are deposited in connected data repositories and commons. By ensuring that these data are fully Findable, Accessible, Interoperable and Reusable (FAIR), the HEAL Data Platform maximizes the value of data generated under the HEAL Initiative.