American Family Cohort, a data resource description

TL;DR

The American Family Cohort (AFC) is a comprehensive, large-scale EHR data resource derived from the PRIME registry, converted into the OMOP CDM, enabling diverse observational research with extensive patient data.

Contribution

This paper introduces the AFC, a novel, large, and diverse EHR data resource converted into a standard data model to facilitate observational health research.

Findings

Approximately 90 million encounters for 7.5 million patients.

Rich demographic, clinical, and insurance data available for research.

Resource is ready for diverse observational studies.

Abstract

This manuscript is a research resource description and presents a large and novel Electronic Health Records (EHR) data resource, American Family Cohort (AFC). The AFC data is derived from Centers for Medicare and Medicaid Services (CMS) certified American Board of Family Medicine (ABFM) PRIME registry. The PRIME registry is the largest national Qualified Clinical Data Registry (QCDR) for Primary Care. The data is converted to a popular common data model, the Observational Health Data Sciences and Informatics (OHDSI) Observational Medical Outcomes Partnership (OMOP) Common Data Model (CDM). The resource presents approximately 90 million encounters for 7.5 million patients. All 100% of the patients present age, gender, and address information, and 73% report race. Nealy 93% of patients have lab data in LOINC, 86% have medication data in RxNorm, 93% have diagnosis in SNOWMED and ICD, 81% have procedures in HCPCS or CPT, and 61% have insurance information. The richness, breadth, and diversity of this research accessible and research ready data is expected to accelerate observational studies in many diverse areas. We expect this resource to facilitate research in many years to come.