Open video data sharing in developmental and behavioural science
Peter B Marschik, Tomas Kulvicius, Sarah Fl\"ugge, Claudius Widmann,, Karin Nielsen-Saines, Martin Schulte-R\"uther, Britta H\"uning, Sven B\"olte,, Luise Poustka, Jeff Sigafoos, Florentin W\"org\"otter, Christa Einspieler,, Dajie Zhang

TL;DR
This paper demonstrates that face-blurring in infant movement videos preserves data utility for clinical and computer analysis, enabling privacy-compliant data sharing to advance developmental research.
Contribution
It introduces a practical face-blurring de-identification method that maintains classification accuracy for both humans and algorithms in infant movement videos.
Findings
Face-blurring does not impair classification accuracy.
Pseudonymisation is a viable privacy-preserving approach.
Large-scale shared datasets can be created with privacy safeguards.
Abstract
Video recording is a widely used method for documenting infant and child behaviours in research and clinical practice. Video data has rarely been shared due to ethical concerns of confidentiality, although the need of shared large-scaled datasets remains increasing. This demand is even more imperative when data-driven computer-based approaches are involved, such as screening tools to complement clinical assessments. To share data while abiding by privacy protection rules, a critical question arises whether efforts at data de-identification reduce data utility? We addressed this question by showcasing the Prechtl's general movements assessment (GMA), an established and globally practised video-based diagnostic tool in early infancy for detecting neurological deficits, such as cerebral palsy. To date, no shared expert-annotated large data repositories for infant movement analyses exist.…
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Taxonomy
TopicsNeonatal Respiratory Health Research · Infant Development and Preterm Care · Neonatal and fetal brain pathology
