Amplifying Privacy: Scaling Up Transparency Research Through Delegated Access Requests
Hadi Asghari, Thomas van Biemen, Martijn Warnier

TL;DR
This paper introduces a delegated access request method to enhance transparency research by allowing researchers to obtain data on behalf of participants, simplifying the process and ensuring participant control.
Contribution
It proposes a novel delegated access approach, including legal, procedural, and technical frameworks, tested in a pilot study to improve transparency research methods.
Findings
Delegated access requests are effective and participant-friendly.
Different sectors respond variably to delegated requests.
The method maintains participant control and information during data access.
Abstract
In recent years, numerous studies have used 'data subject access requests' in a collective manner, to tackle information asymmetries and shed light on data collection and privacy practices of organizations. While successful at increasing transparency, such studies are quite hard to conduct for the simple fact that right of access is an individual right. This means that researchers have to recruit participants and guide them through the often-cumbersome process of access. In this paper, we present an alternative method: to ask participants to delegate their right of access to the researchers. We discuss the legal grounds for doing this, the advantages it can bring to both researchers and data subjects, and present a procedural and technical design to execute it in a manner that ensures data subjects stay informed and in charge during the process. We tested our method in a pilot study in…
Peer Reviews
No public reviews on file for this paper yet. If you reviewed it on a platform where reviews are public (OpenReview, ICLR, NeurIPS, ICML), you can paste yours below so the community can read it here.
Videos
No videos yet. Explain this paper in a talk, walkthrough, or lecture? Add one.
Taxonomy
TopicsPrivacy, Security, and Data Protection · Privacy-Preserving Technologies in Data · Ethics in Clinical Research
