Best Practices for Collecting Gender and Sex Data
Suzanne Thornton, Dooti Roy, Stephen Parry, Donna LaLonde, Wendy, Martinez, Renee Ellis, David Corliss

TL;DR
This paper discusses the complexities of collecting and analyzing human sex and gender data, emphasizing ethical considerations, privacy concerns, and proposing best practices for more accurate and respectful data collection.
Contribution
It offers statistically informed recommendations for collecting and analyzing sex and gender data that respect individual identities and enhance data quality.
Findings
Provides guidelines for ethical data collection
Highlights privacy protection strategies
Suggests standards for higher quality data
Abstract
The measurement and analysis of human sex and gender is a nuanced problem with many overlapping considerations including statistical bias, data privacy, and the ethical treatment of study subjects. Traditionally, human gender and sex have been categorized and measured with respect to an artificial binary system. The continuation of this tradition persists mainly because it is easy to replication and not, as we argue, because it produces the most valuable scientific information. Sex and gender identity data is crucial for many applications of statistical analysis and many modern scientists acknowledge the limitations of the current system. However, discrimination against sex and gender minorities poses very real privacy concerns when collecting and distributing gender and sex data. As such, extra thoughtfulness and care is essential to design safe and informative scientific studies. In…
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Taxonomy
TopicsLGBTQ Health, Identity, and Policy · Sex and Gender in Healthcare · Adolescent Sexual and Reproductive Health
