Beyond the EULA: Improving consent for data mining
Luke Hutton, Tristan Henderson

TL;DR
This paper critically examines current consent practices in data mining, highlighting their shortcomings and proposing an empirically validated approach to enhance meaningful consent and ethical data collection.
Contribution
It introduces a new consent paradigm based on human-data interaction, supported by case studies and best practices for ethical data mining.
Findings
Existing consent methods often lack clarity and sufficiency.
The proposed approach improves user understanding and control.
Best practices help align data collection with user expectations.
Abstract
Companies and academic researchers may collect, process, and distribute large quantities of personal data without the explicit knowledge or consent of the individuals to whom the data pertains. Existing forms of consent often fail to be appropriately readable and ethical oversight of data mining may not be sufficient. This raises the question of whether existing consent instruments are sufficient, logistically feasible, or even necessary, for data mining. In this chapter, we review the data collection and mining landscape, including commercial and academic activities, and the relevant data protection concerns, to determine the types of consent instruments used. Using three case studies, we use the new paradigm of human-data interaction to examine whether these existing approaches are appropriate. We then introduce an approach to consent that has been empirically demonstrated to improve…
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Taxonomy
TopicsEthics in Clinical Research · Ethics and Social Impacts of AI · Privacy, Security, and Data Protection
